We Listen. We Care. | Compassion & Choices

Leaders in the care of patients who face serious and life-limiting illness have designated November as National Hospice and Palliative Care Month, prompting more stories about both options. The Milwaukee Journal Sentinel gives a very good overview of palliative care and hospice in this Q&A with Dr. Diane Meier. The theme of this year’s observance is “We Listen. We Care.”

Listening is the No. 1 objective of our End-of-Life Consultation team (EOLC). Do you or someone you know face a serious illness? Do you have questions about palliative care or hospice? A Compassion & Choicesrepresentative will gladly answer any questions you or your loved ones have about what these options mean and how each can improve quality of life. Anyone can access an EOLC counselor at no cost by calling 800-247-7421.

Caring about the patient, especially at the end of life, is a key objective of our educational and advocacy efforts. Our goal is to change the focus of medical providers to the patient rather than the patient’s illness. This is the core of our principles for patient-centered care. As individuals face the end of life and try to navigate the health care system, their own values and choices should be paramount. Our seven principles — focus, self-determination, [...] continue the story

“The Market” Broadcasts Across Canada

Hot Docs 2011 Don Haig Award Winner

Twelve years ago, when I was still living in India, I had maids who had scars. When they used to casually tell us they had sold their kidneys, I did not see it as a symptom of a larger evil. -Rama Rau, Director

Every 3 days a Canadian dies waiting for a new kidney; in the US it’s a person a day. Where do patients go to fill the gap?

Filmmaker Rama Rau’s revealing documentary “The Market” follows individual stories that explore the larger issues surrounding the organ trade – and looks at these issues from both a Western point of view as well as from the point of view of people selling their organs. What are the ethics of organ buying and selling? And, what would we ourselves do if we were forced into a similar dilemma?

In a slum in Chennai, India most of the fishermen are in post-trauma conditions, having witnessed or been in the wake of the 2004 Indian Ocean tsunami. They simply refuse to go back to the sea for their livelihood, and to survive, their wives have taken to selling their kidneys to feed the children. The tsunami has accelerated what is [...] continue the story

Patient Commando’s Survival Guide Now Available.

We are proud to release Patient Commando’s Survival Guide: How to Survive and Thrive During Hospital Stays and Long-Term Care.

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Patient Commando attends Health Council of Canada’s National Symposium on Patient Engagement

During the Health Council of Canada Symposium on Patient Engagement Daniel Stolfi, star of Cancer Can’t Dance Like This, disclosed that his tipping point to becoming an engaged patient, came when he was being over medicated in error and suffering bad side effects but no healthcare providers were listening.

Healthcare leaders across the country came together to learn how to improve patient engagement and increase safety and improve outcomes at the Allstream centre in Toronto.

Daniel presented his patient story to inform the system on how to improve communications between doctors and patients and increase the state of collaboration. His presentation was funny, deeply personal and moving. The crowd was animated and laughing.

A report of the symposium is promised to be released this winter.

Be sure to sign up for Patient Commando’s newsletter for updates and to receive a free copy of our white paper:  On a New Frontier of Patient Engagement.

Patient Commando’s reaction to the movie “50/50″

Thanks to Entertainment One Group, Patient Commando received several passes to their latest release 50/50.

We quickly offered the passes through Facebook and Twitter until they were all gone. Yesterday we received the following from fellow Patient Commando, Sean McDermott on his reaction to the film: Today, my daughter Kate and I went to see the movie 50/50. It features a lot of laughter and a heap of Seth Rogans colourful language and pot smoking ways, if you like that…and we did. The movie is a poignant examination of the manner in which family and friends react to chronic/terminal illness. Sometimes I wonder how Kate copes with all this challenge of me, her Dad having an endstage disease On the way out I was thinking how many moments I could relate to, and Kate said to me “that was a good movie for you and I to see together”. I smiled and was grateful for her love and support.” Thank you again to Entertainment One for the opportunity to share this film with our community.

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