“How to Live Before You Die.”

In his 2005 address to the Stanford University graduating class he told them that “death is life’s change agent.” Yesterday, the man who was one of the leaders of the information revolution and permanently changed the way our society shares and communicates information, left this world silent of the end-of-life experience.

He gave us tools to help us elevate ourselves beyond our own expectations of what defines us.  Yet at the end of his life, only a simple statement back on August 24 shared little.

It brings up the issue how even the most innovative of us are still trapped by society’s taboos, by topics that we haven’t got the courage, understanding, or education to talk about comfortably.

Whether its end-of-life or chronic illness, the notion of sickness is something we still don’t have an open dialogue about. People whose bodies are suffering are stigmatized by their conditions. And public behaviour ends up marginalizing the individual.

It would have been interesting, no doubt, had Steve Jobs shared with us, even a minute portion of his experience with illness and impending death. How liberating might it have been if among all the billions of accolades that are coming out today, there would be one that [...] continue the story

Cancer patients, survivors find truth in ’50/50′ | LA Times

In the new film ”50/50,” there is a scene where cancer patient Adam, played by Joseph Gordon-Levitt, is on a gurney being wheeled into the operating room with his parents by his side. As the nurses take the 27-year-old away, he calls out for his mom like he’s a little boy. It’s an affecting moment, but for Matthew Zachary, it was particularly personal.

“That’s exactly what happened to me,” said the 37-year-old father of twins from New York City who was diagnosed withbrain cancer at age 21. “Literally I’m with my parents and they are wheeling me off to the operating room and I lost it. It was a horrible, horrible experience.”

For Heidi Adams, it was the scene at the dinner table between Gordon-Levitt’s character and his mother, played by Anjelica Huston, who wants to move in to help care for him.

“I remember that conversation with my mother, that struggle at that time in your life when you are discovering your independence, fighting for your independence and you are thrown back into this position where you need to rely on people, where you need your mom. It’s very disorienting,” said Adams, 44, from Austin, Texas, who lived with her parents for 2 1/2 years when [...] continue the story

What GPs can learn by listening to patients | The Gaurdian

I was nervous at first and wasn’t sure what to expect. I write this having just come back from our first patient participation group (PPG) meeting. After this inaugural face-to-face, I came home feeling that the disparate group of our patients who made an effort to give up their time were generally pleased that they had attended.

I was really glad to meet them all outside the consulting room yet still on practice turf, managing to listen to their views. And in return I gave them some insight into the workings of their local surgery as well as a whistlestop tour.

Every patient who attended had two things in common – health needs and being registered at our practice. It’s only right that they get to voice their opinions, and that we as a practice can adapt to their needs and provide them with an even better service.

The government has encouraged practices to form such groups as part of a DES, or directed enhanced service. These are – in theory – optional initiatives which reward practices in return for work that improves the quality of patient care.

The themes which came up were no surprise. Access featured heavily. What is the best way [...] continue the story

On a New Frontier of Patient Engagement | Preface

Closing the Door on Cycle 4 2011

Last time, the Cycle 4 Team and I were continuing our journey across Canada –remaining kilometers: 1500, Toronto to Digby. We had already completed roughly 5500 from British Columbia. So no sweat, right?

Well, no. There was sweat. Plenty of it. Half of the reason cyclists always wear glasses is to avoid rain, bugs or dirt in their eyes. The other half is to avoid sweat splashing from the rider in front of them.

No matter the amount of perspiration, the next few hundred kilometers would be extremely special for me. I was fortunate enough to bike through my hometown in Toronto’s east end, and enjoy seeing all the places that have meaning to me; my grandparents’ street, the Tim Horton’s where I usually meet friends, the mall where I had my first job.

My second “hometown” of Kingston, where I spend more than half the year as a student at Queen’s was also one of our stops. To see my friends and family welcoming me home, in both cities, just spurred me on to pedal faster and harder for the last few legs of our ride into Quebec, New Brunswick, and Nova Scotia.

I can firmly say that no other region in the [...] continue the story

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