Other Side

By Daniel Cleghorn and Iain Chisholm

Medium used: Steel – Hanging requirements: wall mount is to be screwed in 43 inches from the ground. The bottom of the sculpture should be three feet from the ground. This is relational to Iain’s abdomen and part of the piece.

Artist Biography

Born in Alberta, and raised between the small towns of Rocky Ford AB, Powell River BC and the city of Calgary AB. My work reflects from the contrast of the two cultures: small town for its community based and empathic value, and city life for its large scale and minimalist style. Currently enrolled at the Alberta College of Art + Design in my third year, as a sculpture major. The undertone of my work is based on the idea of empathy and creating a catalyst for thought and communications between the viewers.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

Talking to Iain about the “moment of meaning” he couldn’t pinpoint one. He just took the Crohn’s as it came, in stride, which was my inspiration. The size and height of the piece is that of Iain’s abdomen to make unique to Iain and his condition. [...] continue the story

Presence

By Zakhari Halas

Medium used: Watercolor and pencil crayon

Artist Biography

Zak Halas an Illustrator and Designer studying at the Alberta College of Art and Design. His practice mainly focusses on comics, illustrated books, and other forms of narrative art. Film and film theory influence much of his work, drawing upon his four years of experience in the Film Studies program at Concordia University in Montreal. He is currently in the process of writing and drawing his own graphic novel, and is spending his time at school experimenting with a variety of media and styles.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

For this piece I wanted to explore the emotional effects that inflammatory diseases had on my conversation partner. Our interview revealed that it was during his childhood that he felt the most impact from these maladies, and I felt that this would be an excellent focal point for the project. I was particularly drawn to the invasive nature that his initial care had. There was a sense of claustrophobia, and a desire for normalcy in his described experiences. I wanted to show that these diseases presented an overwhelming unknown presence to a [...] continue the story

Trapped Within

By Micaela Blondin de Boer

Medium used: Digital

Artist Biography

Micaela is in her final year of study at the Alberta College of Art and Design in the Character Design program. Dramatic costuming and fantasy environments influence her; so much of her art reflects her imagination. She is passionate about writing and focuses her art and design on novels she is working on. Micaela is passionate about creating traditional looking paintings through digital mediums.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

The overall feeling I got from her was her sense of loss and loneliness that came with coping with psoriasis. Remaining isolated from those who do not understand the disease; she was, in a sense, trapped within her home and her body. There were many years that she gave up, and a prevailing sadness and depression became the norm. The inability to speak openly about psoriasis without fear of judgment hampered her ability to maintain connections and feel free from her disease.

Using the artist’s words, describe how they felt about this experience

‘Trapped Within’ is a visual representation of her feelings towards her psoriasis and the experience she had with the disease. The bands [...] continue the story

The new bionics that let us run, climb and dance

Hugh Herr is building the next generation of bionic limbs, robotic prosthetics inspired by nature’s own designs. Herr lost both legs in a climbing accident 30 years ago; now, as the head of the MIT Media Lab’s Biomechatronics group, he shows his incredible technology in a talk that’s both technical and deeply personal — with the help of ballroom dancer Adrianne Haslet-Davis, who lost her left leg in the 2013 Boston Marathon bombing, and performs again for the first time on the TED stage.

No Matter What: Mark Lukach at TEDxMonterey

Published on May 17, 2013 Mark Lukach is a freelance writer based out of San Francisco’s Ocean Beach and author of “Where The Road Meets The Sun,” a memoir about fear, loneliness, uncertainty, and his family’s battle with mental illness. In his TEDxMonterey talk, Mark reflects on the adversity he and his wife have faced over the past few years and suggests that, more than ever, a deep and lasting commitment to the people we love might just be an ancient idea worth reviving.

Because who is perfect?

Published on Dec 2, 2013

Disabled mannequins will be eliciting astonished looks from passers-by on Zurich’s Bahnhofstrasse today. Between the perfect mannequins, there will be figures with scoliosis or brittle bone disease modelling the latest fashions. One will have shortened limbs; the other a malformed spine. The campaign has been devised for the International Day of Persons with Disabilities by Pro Infirmis, an organisation for the disabled. Entitled “Because who is perfect? Get closer.”, it is designed to provoke reflection on the acceptance of people with disabilities. Director Alain Gsponer has captured the campaign as a short film. The figures are life-sized, three-dimensional representations of Miss Handicap 2010, Jasmin Rechsteiner, radio presenter and film critic Alex Oberholzer, track and field athlete Urs Kolly, blogger Nadja Schmid and actor Erwin Aljukic.

“We often go chasing after ideals instead of accepting life in all its diversity. Pro Infirmis strives especially for the acceptance of disability and the inclusion of people with disabilities,” says Mark Zumbühl, a member of the Pro Infirmis Executive Board, in describing the campaign.

See our former TV-Spots under:

Bear: http://youtu.be/zFWr-CKMWGY Gianni Blumer: http://youtu.be/Qr-xnqgpin8

Music: Lost At Sea by Dave Thomas Junior

The Kindness of Shockwave Lithotripsy

By: Robert Wakulat

After a number of years of intermittent pain in the lower abdomen area, I finally asked my family doctor to probe for potential causes mid-2013. X-rays came back indicating I might have a kidney stone but further exploration would be required before confirming this was the case. After a subsequent ultrasound it was determined that I should see a kidney stone specialist to provide me with my options.

Turns out my stone was too big to pass but small enough to be a candidate for shock wave lithotripsy, which involves sound waves pummelling the stone for about 30-40 minutes. While some dietary changes appeared to end the earlier waves of pain, the specialist felt that I was at risk of having the stone get dislodged and cause serious damage to other parts of the kidney or urinary tract. The best way to avoid this was to undergo SWL.

Three months after this diagnosis, I spent a full day collecting my urine, which was to be brought to St. Mike’s Hospital in Toronto where the first of three SWL facilities in Ontario was established. Eight hours after my last urine collection, I was taking a final pre-op ex-ray to confirm the [...] continue the story

Central LHIN funds new model of care for people with complex medical needs

Published on Dec 10, 2013

At Central LHIN, we truly believe that leading through collaboration results in outcomes that surpass what any one or two organizations could ever accomplish on their own. An example of this is a new model of care that was developed for seven young people with complex medical needs in Central LHIN so that they can live in a home setting, rather than the hospital, and enjoy a new way of life. This was achieved by bringing together health care, housing, care coordination and support services to respond to a health care service gap identified by the Central LHIN.

But You Said I Wouldn’t Need Radiation

Abstract

Summary: Participatory care for breast cancer patients requires doctors to do more than simply tell patients about their diagnoses. It’s about communicating effectively so that patients can comprehend complex medical information, make informed treatment decisions, and feel hopeful about the future. After being diagnosed with breast cancer, the average patient consults with as many as six different physicians about a care plan.[¹] The most effective practitioners use patient-centered communication to encourage patients to participate in their care and to reduce hopelessness.[²] Breast cancer survivor and communication skills trainer Stephanie Roberson Barnard tackles this important subject with a personal essay comparing post-mastectomy appointments with two different physicians. Both physicians interpreted the same results, but the first doctor’s communication style left Stephanie anxious and bereft, while the second doctor’s communication style helped her feel informed and hopeful.

Keywords: Breast cancer, patient-centered communication, doctor-patient communication, patient participation.

Citation: Barnard SR. But you said i wouldn’t need radiation. J Participat Med. 2014 Feb 28; 6:e4.

Published: February 28, 2014.

Competing Interests: The author has declared that no competing interests exist.

Disclaimer: The names of providers have been changed for this article. The Waiting Game When my husband, David, and I arrive at the General Surgeon Dr. Alberts’s office for our appointment, [...] continue the story

“No Scents Makes Sense” in the workplace

Published on Jan 4, 2014

Liz Rice tells her personal story about developing Multiple Chemical Sensitivities (MCS) in the workplace. She discusses the issue of scents / fragrant products / off-gassing in the workplace; the effect of scented products on people with Environmental Sensitivities and MCS and, the cost$ to the employer of not having OR enforcing a scent-free policy.

Follow the scent trail: http://www.scent-smart.ca/