My Journey: Lee Durdon, President and Founder, Sjogren’s Society of Canada
Sjogren’s Syndrome is the second most prevalent autoimmune disorder that few have heard of. Sjogren’s takes an average of 5–9 years to be diagnosed. Sufferers may not look sick on the outside adding to the delay in diagnosis. Affects 430,000 Canadians; 3 x more than Multiple Sclerosis and Lupus; and 9 out of 10 are women, but men and children also suffer.
After a long road and finally being diagnosed with Sjogren’s Syndrome several years ago, I was fortunate to find excellent doctors and excellent care, but it still wasn’t enough. As many of us living with Sjogren’s are all too well aware of, just as we seem to get one symptom under control, another equally annoying, disruptive, painful symptom appears or an unwanted one returns again. The unpredictability of Sjogren’s is particularly difficult to live with. So goes the journey.
I felt I owed it to my husband and family but more importantly, I owed it to myself to find a way to try to live a better life or even have a life with Sjogren’s. I needed to find support from other people with the same disease that could understand [...] continue the story