The next revolution in health care? Empathy

Published on Sep 8, 2014

This talk was given at a local TEDx event, produced independently of the TED Conferences. Paul Rosen, MD, a pediatric rheumatologist, serves as the Clinical Director of Service and Operational Excellence at Nemours. He received a masters of public health degree from Harvard University and a masters of medical management degree from Carnegie Mellon University. He was named ‘One of the First 100 Innovators’ by the U.S Federal Government Agency for Healthcare Research and Quality. Dr. Rosen’s interests include patient-physician communication, family-centered care, and the patient experience. He teaches medical students about improving the patient experience, and he serves as the faculty mentor for the physician executive leadership program for medical students at Jefferson Medical College. He is also a volunteer faculty member at University of Central Florida College of Medicine.

Health Quality Transformation 2015 – Judith John

Published on Nov 25, 2015

Judith John delivers a powerhouse presentation on transforming care by combining her patient experience with an inoperable brain tumour with that as a hospital executive to provide unique insights. Judith John’s career spans all aspects of communications, marketing and public affairs, with an extensive background in arts, culture, not-for-profit, health and social services.

Ms. John is active within the health care sector, having served as Vice President of Communications and Public Affairs at the Hospital for Sick Children and as Vice President of Communications and Marketing at Mount Sinai Hospital and Foundation. She also volunteers with Toronto Western Hospital, Princess Margaret Cancer Centre, University Health Network and Mount Sinai, concentrating on the patient experience, partnerships and communications.

A patient advisor for UHN’s Partners in Care program, Ms. John is a trained Patient Partner. She is part of the Province of Ontario’s Phoenix Project on education and patient care, and works with Patients Canada. She was on the 20th anniversary awards selection committee for The Change Foundation regarding initiatives around patient and family-centred care. She also volunteers with Health Quality Ontario, and is currently working on government relations for the Council of Academic Hospitals Ontario.

Ms. John has extensive community experience, having [...] continue the story

Dignified Dying – The Story of My Father

Richard Stone tells the story of his father’s hemorrhagic stroke and his family’s difficult decision of continuing treatment or turning to palliative care. The video illustrates how our culture does not always equip us with understanding how to handle the process of death. With his story, Stone acknowledged the patient voice principle of dignity, and how this is so important when it comes to dealing with this life process.

Stone is a nationally recognized speaker on the power of storytelling and its applications in healthcare. He got his start more than 20 years ago with the creation of the StoryWork Institute, where he developed story-based training programs for team building, leadership development, and diversity training for healthcare institutions. He has worked with organizations such as Novant Health, Walter Reed Army Medical Center, and MedStar Health, as well as training hospice volunteers and staff around the country through his program, “Journey Into the Healing Power of Storytelling.”

Stone has authored many books, including “The Healing Art of Storytelling,” “Stories: The Family Legacy,” and “The Kingdom of Nowt.” He is also the co-author of “The Patient Survival Handbook.” Prior to joining Synensis, he was the StoryAnalytics Master for the IDEAS Innovation team, where he [...] continue the story

Patient Capitalism

Jacqueline Novogratz founded and leads Acumen, a nonprofit that takes a businesslike approach to improving the lives of the poor. In her book “The Blue Sweater” she tells stories from the philanthropy, which emphasizes sustainable bottom-up solutions over traditional top-down aid.

What can health care charities learn from this alternative model?

It’s Fibroids, not Thyroid!

“Women’s health, aside from cancer, is not on the radar, not part of the conversation.” — Dr Nicholas Leyland, Professor and Chair of the Department of Obstetrics and Gynecology, The Michael G DeGroote School of Medicine, McMaster University If you’re a woman, you probably have fibroids — non-cancerous growths of the uterus, ranging in size from seedling to cantaloupe, that often appear during childbearing years. By age 50, as many as three out of four of women have fibroids and a third are symptomatic due to bleeding or the effect of the mass on surrounding tissue.

“It’s fibroids, not thyroid!” Actor/ESL Teacher Natasha Fiorino

Most women have fibroids, yet no one has heard of them and so when Natasha Fiorino drummed up the courage to tell her boss about why she would need some time off, it became like that telephone game we played as kids: word got around and people thought she had a thyroid problem. But Natasha’s boss understood and supported her, proving that talking about fibroids (not thyroid) works.

Fibroids are the leading cause of hysterectomy — the second most common surgery performed on women (after Caesarian section). Over half a million hysterectomies are performed each year in North America. One out [...] continue the story

Janine Shepherd: A broken body isn’t a broken person

Cross-country skier Janine Shepherd hoped for an Olympic medal — until she was hit by a truck during a training bike ride. She shares a powerful story about the human potential for recovery. Her message: you are not your body, and giving up old dreams can allow new ones to soar.

Donald Trump calls it “wherever”. Meet history’s most maligned organ

“You could see there was blood coming out of her eyes, blood coming out of her wherever…”

Donald Trump disparagingly refers to it as “wherever”. It’s the background of every ultrasound baby picture including those overshared by Michael Bublé on Instagram…

It’s the place where we were all implanted and spent the first, most carefree nine months of our lives, but is there a more maligned, disrespected or mistreated organ than the uterus?

The ancient Greeks who gave us democracy, tragedy and the Pythagorean theorem also came up with the wacky wandering womb. In Plato’s Timaeus, the uterus is described as a living creature that travels around the body, a uterine Randle McMurphy inciting the other organs to rebellion and generally causing mayhem, both physical and emotional.

The Greek word for uterus is hystera (ὑστέρα) which begat the diagnosis hysteria and expectant descriptions of errant behaviour–George Beard wrote a catalogue of hysterical symptoms running seventy-five pages, a list that he considered incomplete. The etymological line of causality blames the uterus for hysteria and therefore it’s no surprise that hysterectomy was a common treatment.

From ancient Greece to as recently as the 1950s, hysteria has been used as a catchall to dismiss women as frail and flighty. Today, pre-menstrual syndrome, the fearsome Rosemary’s Baby of hysteria, has taken its place. Rather than high-strung hysterical women who can’t handle the stresses of life, women in the throes of PMS are monsters of hormonal imbalance. [...] continue the story

Sparks of Change

25. Mar, 2015 Peaks and Troughs. Ebb and Flow. However much I strive for consistency, it always seems to evade me. Partly because I guess ‘that’s life’. Partly because I seem to like to mix things up! I tend to regularly kick off new challenges. From finishing 2014 tired, living back home, and struggling with a deterioration in my disability. I’m now in a new flat, building my health back up, and fighting (tooth and nail) for improvements on my wheelchair, car, care and housing adaptions. I was lucky to spend time in Fuerteventura and Austria since the New Year began, which helped keep my spirits up for sure. Having ensured that my foundations were supporting my weaker body, and that my diary commitments are within my new limits; I’ve started building life onwards and upwards again. Finally, after 4 years of self employment, I’m earning enough regular income to breath a little easier. I won’t take things for granted, but I feel more able to buy myself a couple of non essential/materialistic treats for once! Believe me, I’ve had some dark moments and thoughts since leaving my London monthly salary in 2011. Whilst having enough money to cover the bills and to ‘live a [...] continue the story

Why we think IBD should be considered a Chronic Illness

Published on Nov 25, 2013

Elliott and Rob from Gut Inspired, a group of Canadians living with Inflammatory Bowel Disease (IBD; Crohn’s Disease and ulcerative colitis) talk about why IBD should be considered a ‘chronic illness’. When living with IBD, understanding and support are incredibly important. Imagine a world where you don’t have to explain what living with IBD is like because your friends, family and employers already know, where the government sees digestive disease as a priority and where people experiencing IBD symptoms are identified and diagnosed right away. We think this is possible if you keep taking the time to tell others what it is like living with IBD. Elliott, and Rob share from their first-hand experience living with IBD and challenges they have faced in hopes that their actions, might help others. We hope you share your story too. For more information about Gut Inspired and living well with IBD visit www.gutinspired.ca or join the conversation. www.Facebook.com/gutinspired www.twitter.com/gut_inspired | @gut_inspired

Cracked: new light on dementia

Published on Jun 3, 2015

Cracked: new light on dementia follows Elaine Carter’s journey from her diagnosis through to her new life in a long-term care home. Elaine and her children, Caroline and Clay, grapple with what the diagnosis means, if and how the diagnosis changes their relationships and how they struggle to be with each other in the present where Elaine calls them to be. Filled with poignancy, honesty and humour, this play brings to the fore the richness of the social world of dementia and encourages audiences to see the humanity of persons who are living with dementia. The play is an innovative research-based theatre production that casts a critical light on society’s one-dimensional view of dementia as an unmitigated tragedy. The play raises questions about the predominant discourse of loss that defines current conceptions of dementia, and the dehumanizing care practices that still prevail in institutional care settings. Inspired in part by Leonard Cohen’s words in Anthem, the play is intended to inspire alternative ways of seeing persons with dementia, instill the importance of maintaining strong relationships with them, and reinforce the imperative for good ethical care.

The play is based on research conducted by Drs. Sherry Dupuis, Gail Mitchell, [...] continue the story