Ignored at a Support Group for Saying a Word!? (Nutrition)!

In the year following my daughter’s diagnosis of Crohns disease also called Inflammatory Bowel Disease (IBD), we had a surprising experience! As a mother of a child with a chronic illness the first thing I did was try to educate myself as much as possible. Twelve years ago, when my child was diagnosed with this debilitating illness, I searched the internet to learn all I could about IBD. The next thing I did was join IBD organizations to learn and show my support to find a cure!

My daughter, Jordyn was 12 years old at the time she was diagnosed. Her symptoms were chronic abdominal pain, diarrhea, bloating, gas attacks, vomiting, fevers, skin rashes, anemia, joint pain, and indolent sores in her mouth. She had lost 30 pounds in 6 months and had stopped growing resulting in a 2-year growth delay as well as a failure of normal teeth development.

At the beginning of treatment, she was prescribed steroids and chemotherapy medication that she willingly took for one year, despite the fact that she showed no improvement at all. Her condition worsened, and, to make matters worse, her hair began to fall out. She had missed 60 days of school and was [...] continue the story

Ethan’s Story: Hockey, Guts and Diabetes

Published on Sep 14, 2012

Ethan tells us what its like to grow up with Type 1 diabetes from a very young age. Great and powerful insights for people living with diabetes, their families and health care professionals. This film has been used as curriculum for the University Of Toronto medical program. Funded by The York University Nursing Academy. Directed by Robert Hawke.

Clouds by Zach Sobiech

Published on Dec 5, 2012

“Clouds” is now available on iTunes! To download go to: https://itunes.apple.com/us/album/clo…

All proceeds support the Zach Sobiech Osteosarcoma Fund.

Zach’s CD – Now Available!

Zach’s family also started the Zach Sobiech Osteosarcoma Fund-http://ccrf.convio.net/site/TR/Events…, to fund research for the cancer that is taking his life, in hopes that kids diagnosed tomorrow will have a better chance for a cure. For gifts $20 or higher, you will receive a copy of Zach’s album featuring the studio recording of “Clouds”, along with an acoustic version, and a selection of other songs. Click here for more information: http://www.childrenscancer.org/zach/

Look for “Clouds” in online music stores soon!

Zach’s Story

Zach Sobiech, of Lakeland, Minnesota, doesn’t go far without his guitar in tow. Facing months to live, 17-year-old Zach is turning to music – writing and performing songs as a way to say goodbye to his friends and family.

Zach was diagnosed with osteosarcoma in 2009. Since his diagnosis, Zach has endured several surgeries and months of chemo. In May, 2012, the cancer spread to his pelvis and lungs. There are no known effective treatments left. As Zach fights to live, he remains the same joyful soul he has always been. He still smiles as brightly as he did [...] continue the story

Diabetes Art Day 2013

February 4th, by Virtue

During this year’s Winter Slipstream we offered more indoor sessions than we have in the past. One of the indoor activities available this year was to put something together for Diabetes Art Day. Lee Ann, the founder of Diabetes Art Day, describes the purpose of the day as follows: Diabetes Art Day is a web-based initiative for the Diabetes Online Community to “tell a story” about life with diabetes though creative visual expression. It’s a way for us to tell our stories so we can connect and share with each other and with our loved ones. It’s a way to generate diabetes awareness outside of the DOC [Diabetes Online Community] by sharing artwork on Facebook, Twitter, blogs and community websites… Whether you have lots of experience making art or none at all, Diabetes Art Day is for you to show the world what it’s like to live with diabetes in that “a picture is worth 1000 words” kind of way. Unfortunately, such eloquent words escaped me while introducing the session, and after giving a general description of the origins of Diabetes Art Day I summed it up as: “Basically, it’s a space where you can beat the shit out [...] continue the story

Painting Pain Art Gallery – Three

Breast Cancer Mastectomy

I am a woman thru and thru. I am not defined by the size of my breast. I am sexy with an A cup or a D cup. I am sexy even with only 1 breast. I feel beautiful, therefore I am beautiful. A womans beauty comes from within and not from what is on the outside. I am beautiful, see me shine, I still have one left behind, a woman I am until the end, even though I am not a ten, my beauty is here, it’s now within, I am a woman till the end. Poem by: Nancy Crowell

Laura’s Foot This morning I woke somewhere between 6:00 and 6:30 AM. I do not know the reason I woke. I had only been “asleep” for about five hours, maybe less. I went to “bed” at just about 11:30 PM. I cannot see in the mornings, so everything was a myriad of light and dark, without color. I cannot hear normal sounds in the morning. I only hear a combination of ocean roar, antique radio and television static and my own heartbeat as loud as Poe’s Telltale heart. I lay there on my bed staring up, as even rolling over to get out of bed can take ten [...] continue the story

Grief, A Necessary Part of Accepting Diabetes

Michelle Sorensen | December 18, 2012

I don’t remember the first time I had to inject myself with a needle. I don’t remember being taught how to test my blood sugar. But I have many memories of being diagnosed with type 1 diabetes. In retrospect, the day of my diagnosis was the beginning of a long process of grieving my diabetes. At the time, however, I had no idea that being diagnosed with a chronic illness would involve a grieving process.

Elisabeth Kübler-Ross famously outlined the stages of grief in her 1969 book called On Death and Dying. She described five stages (denial, anger, bargaining, depression, and acceptance) that describe a process by which people deal with grief and tragedy. Many people think of the stages of grief as just relating to loss of a loved one. These stages, however, apply to many types of loss, including divorce, job loss, dealing with terminal illness, or the diagnosis of a life-changing and life-threatening disease like diabetes. The stages are not in a consistent order and people may go back and forth between different stages. Also, not everyone experiences all the stages. The way each person experiences grief is unique.

On the day I was [...] continue the story

Brave

Meet Tommy Carroll. He has been skating since he was ten, but has been blind since the age of two…

Video production: EyEFORcE

Director: Arthur Neumeier

Director of Photography/Editor: Rakhal Heijtel

Agency: The Odd shop

Creative Directors: Niels de Wit, Robert van der Lans

Production: Josefien Homan

Music: ”WHERE THE HEART IS”

Written by Marijn van der Meer and Jorrit Kleijnen

Performed by Marijn van der Meer

Produced by Alexander Reumers and Jorrit Kleijnen

Featured Guitarist: Lourens van Haaften

Client: VeiligheidNL, Perry Sport

eyeforce.nl

perrysport.nl/bebravebesafe

theoddshop.nl

Psychological Support: The Missing Piece in Diabetes Care

Michelle Sorensen | November 13, 2012

When I was diagnosed with type 1 diabetes in 1999, I was both overwhelmed with information and desperate to find more information. It was easy to find depressing facts about the immediate dangers I would face, as well as the future complications I might suffer one day. When I looked for more, however, something about support or about real people living with type 1, there was nothing more than information about fundraising and camps for kids with diabetes.

I was in the middle of graduate school at the time of my diagnosis, training to be a psychologist. In the years since, while learning to manage my diabetes, I have furthered my knowledge about how to help others with diabetes make changes and feel better. I learned quickly that the psychological aspect of diabetes care is mostly absent in the diabetes field. Patients had access to information, but they didn’t have support.

Eventually, I began to counsel people with both type 1 and type 2 diabetes. Using cognitive behavioral therapy, I have tried to help my clients learn how to change the way they think, so that they can change the way they feel and behave. In recent [...] continue the story

Health Mentor – Season One – Episode 1 – Jennifer

By: Jennifer Ladrillo

For years following my diagnosis, I believed that the only way I could find a job and truly be able to build a genuine, solid foundation for my career, was if I kept my “disability” a secret. I thought that in doing so, I would be protected from people judging me as “un-fit”, and from pitying me in any way. Now though, 14 years later, I am not only happy, but eager to tell my story to people (strangers at that!), openly and honestly – no holds barred!

How had I come to be here?

A girlfriend and past co-worker of mine told me she was inspired to take the Health Mentorship course because of me; as she had seen the obstacles I faced balancing my health, work, social life, and everything in between. After taking the course she approached me, asking whether or not I would be interested in taking part as a mentor – the timing could not have been more perfect. I had made great strides from grieving the loss of my old self, and not only accepting, but actually embracing the life I now had. The challenges I had faced and always struggled not to be [...] continue the story

How Gen Y Is Changing Cancer

F*ck Cancer founder Yael Cohen is at the forefront of a fresh news movement that has multiple generations working together to begin “looking for cancer instead of just finding it.”

Following her mother’s breast cancer diagnosis in 2009, Yael Cohen decided to use the ‘F word’ to fight the ‘C word.’ Yael is founder, president, and CFF (Chief Cancer Fucker) of FCancer, a non-profit organization that encourages and empowers Generation Y talk to their parents about early detection. It gives them a clear call to action to involve, engage, and educate their parents. Named one of Fast Company’s “100 Most Creative People in Business,” in 2012, Cohen has grown FCancer into an inspirational and influential player in the charity space and has recruited a host of A-list celebrities to use their influence to garner public support.