A Dream is a Wish that Your Heart Makes

Daniela’s Wish …. No more twitchies! A mother’s story of living with the challenges of her daughter’s seizure disorder — Dravet Syndrome, a rare and catastrophic form of epilepsy.

Funny thing, but I knew from conception that I was going to have a girl and I would name her Daniela (in honour of my husband’s sister, may she rest in peace). My husband believed I ‘willed the baby’ to be a girl, our special angel. Little did we know how special Daniela would be! As a first time mom, I doted on my little one…with every cry, with every whimper, I was there for her. Even when my own mom would say ‘let her cry it out…don’t pick her up right away…she has to learn to soothe herself…thankfully I did not listen. I wanted to be with her always, to protect her, to swaddle her, to love her. And on that fateful day, February 10, 1993, when she cried out to me from waking from her afternoon nap, I ran to her…I couldn’t wait to be with her. But when I went to her crib, what I found changed my life; my daughter’s life; our family’s life….Daniela was lying limp, unresponsive, unconscious and [...] continue the story

Asylum Squad – A Mad Pride Comic

 

Saraƒin is a Toronto area cartoonist, writer, illustrator, and activist. www.asylumsquad.com began as a self-appointed therapy during a year long psychiatric incarceration. Her first novel, Asylum Squad Side Story: The Psychosis Diaries collects the earlier strips, which were first uploaded to an online blog during Saraƒin’s hospital passes.

Saraƒin lives with the diagnosis of schizoaffective disorder, which was brought on by chronic marijuana and automatism usage. She has been mentioned in the Globe and Mail, the Torontoist, has been published in the U of T’s Ars Medica, Bitch magazine online, and has spoken at the University of Toronto’s Faculty of Medicine during the 2012 Comics and Medicine conference. Her dream is to make a living doing art alone.

 

The UnHysterectomy: Solving Your Painful, Heavy Bleeding Without Major Surgery

The following excerpt is from the book The UnHysterectomy, based on Holly Bridges’ journey to avoid a hysterectomy after being diagnosed with life-threatening anaemia caused by multiple fibroids. The Big Picture Listen up, gals. We have an opportunity on our hands, an opportunity to change the course of history. Not by marching or carrying placards or burning effigies, but by simply saying these three words: enough is enough.

If we, as women and as patients, demand the kind of change I am proposing in this book, we could improve the health, safety and quality of life of women worldwide; get them back on their feet faster and with less pain, less risk and fewer complications; save billions of dollars in unnecessary surgeries and postoperative hospitalization due to complications; invest that money into research, public awareness and prevention; free up our precious operating rooms for those who really need them; and alter the way our society perceives and treats painful, heavy periods. As amazing as it sounds, we may even increase our fertility rates as many younger women (some of whom you will meet in Chapter 14) who were previously told hysterectomy was their only treatment option are now able to conceive and have [...] continue the story

Detoxing: An Intimate Exorcism

By Andrea Shewchuk

I began the process of rebalancing my intestinal flora, cleaning and rebuilding my liver tissue and nourishing my body with cocktails of antioxidants, freshly-pressed juice and a variety of fibres almost 2 months ago, addressing rapidly spreading and debilitating eczema from a systemic perspective. Until now, the process had expressed itself very logically and linearly as not only the eczema cleared before my eyes, but the many other side effects of candida pollution, emergency pharmaceuticals, passive exposure to chemicals, my emotional toxins, elusive unhealthy dynamics etc. gracefully disappeared. Only very once in awhile did I want to think that it couldn’t be this simple. And then I would swiftly abandon the thought.

It has been a week since I returned from a re-visit to the ocean and re-connection to a place of profound development. The week seemed uneventful except for many new stories and memories of laughter.

I had felt drained and the all-too familiar pain in my chest as I feared a return of pneumonia. This ended after less than 2 days when I was woken up one night by the consciousness of thick mucous in my throat. I was confused since my recent history with mucous was lung-related.

My throat burned. Viral, bacterial, a cold, new or retracing. Energy or [...] continue the story

Jordyn’s Art Gallery

Jordyn is a junior at NYIT University majoring in Art & Computer Graphics. She is a 2007 recipient of the UCB Crohn’s $10,000 scholarship for her academic achievements and perseverance through her disease.

 

The Foundation for Nutrition and Inflammatory Bowel Diseases in Children, Inc. (IBD) was formed to raise awareness and foster further research in nutrition and growth factor interventions currently available to patients with IBD.

If you would like further information regarding this research please contact the NIBD.

More NIBD Stories

Ignored at a Support Group for Saying a Word!? (Nutrition)!

In the year following my daughter’s diagnosis of Crohns disease also called Inflammatory Bowel Disease (IBD), we had a surprising experience! As a mother of a child with a chronic illness the first thing I did was try to educate myself as much as possible. Twelve years ago, when my child was diagnosed with this debilitating illness, I searched the internet to learn all I could about IBD. The next thing I did was join IBD organizations to learn and show my support to find a cure!

My daughter, Jordyn was 12 years old at the time she was diagnosed. Her symptoms were chronic abdominal pain, diarrhea, bloating, gas attacks, vomiting, fevers, skin rashes, anemia, joint pain, and indolent sores in her mouth. She had lost 30 pounds in 6 months and had stopped growing resulting in a 2-year growth delay as well as a failure of normal teeth development.

At the beginning of treatment, she was prescribed steroids and chemotherapy medication that she willingly took for one year, despite the fact that she showed no improvement at all. Her condition worsened, and, to make matters worse, her hair began to fall out. She had missed 60 days of school and was [...] continue the story

Ethan’s Story: Hockey, Guts and Diabetes

Published on Sep 14, 2012

Ethan tells us what its like to grow up with Type 1 diabetes from a very young age. Great and powerful insights for people living with diabetes, their families and health care professionals. This film has been used as curriculum for the University Of Toronto medical program. Funded by The York University Nursing Academy. Directed by Robert Hawke.

Clouds by Zach Sobiech

Published on Dec 5, 2012

“Clouds” is now available on iTunes! To download go to: https://itunes.apple.com/us/album/clo…

All proceeds support the Zach Sobiech Osteosarcoma Fund.

Zach’s CD – Now Available!

Zach’s family also started the Zach Sobiech Osteosarcoma Fund-http://ccrf.convio.net/site/TR/Events…, to fund research for the cancer that is taking his life, in hopes that kids diagnosed tomorrow will have a better chance for a cure. For gifts $20 or higher, you will receive a copy of Zach’s album featuring the studio recording of “Clouds”, along with an acoustic version, and a selection of other songs. Click here for more information: http://www.childrenscancer.org/zach/

Look for “Clouds” in online music stores soon!

Zach’s Story

Zach Sobiech, of Lakeland, Minnesota, doesn’t go far without his guitar in tow. Facing months to live, 17-year-old Zach is turning to music – writing and performing songs as a way to say goodbye to his friends and family.

Zach was diagnosed with osteosarcoma in 2009. Since his diagnosis, Zach has endured several surgeries and months of chemo. In May, 2012, the cancer spread to his pelvis and lungs. There are no known effective treatments left. As Zach fights to live, he remains the same joyful soul he has always been. He still smiles as brightly as he did [...] continue the story

Diabetes Art Day 2013

February 4th, by Virtue

During this year’s Winter Slipstream we offered more indoor sessions than we have in the past. One of the indoor activities available this year was to put something together for Diabetes Art Day. Lee Ann, the founder of Diabetes Art Day, describes the purpose of the day as follows: Diabetes Art Day is a web-based initiative for the Diabetes Online Community to “tell a story” about life with diabetes though creative visual expression. It’s a way for us to tell our stories so we can connect and share with each other and with our loved ones. It’s a way to generate diabetes awareness outside of the DOC [Diabetes Online Community] by sharing artwork on Facebook, Twitter, blogs and community websites… Whether you have lots of experience making art or none at all, Diabetes Art Day is for you to show the world what it’s like to live with diabetes in that “a picture is worth 1000 words” kind of way. Unfortunately, such eloquent words escaped me while introducing the session, and after giving a general description of the origins of Diabetes Art Day I summed it up as: “Basically, it’s a space where you can beat the shit out [...] continue the story

Painting Pain Art Gallery – Three

Breast Cancer Mastectomy

I am a woman thru and thru. I am not defined by the size of my breast. I am sexy with an A cup or a D cup. I am sexy even with only 1 breast. I feel beautiful, therefore I am beautiful. A womans beauty comes from within and not from what is on the outside. I am beautiful, see me shine, I still have one left behind, a woman I am until the end, even though I am not a ten, my beauty is here, it’s now within, I am a woman till the end. Poem by: Nancy Crowell

Laura’s Foot This morning I woke somewhere between 6:00 and 6:30 AM. I do not know the reason I woke. I had only been “asleep” for about five hours, maybe less. I went to “bed” at just about 11:30 PM. I cannot see in the mornings, so everything was a myriad of light and dark, without color. I cannot hear normal sounds in the morning. I only hear a combination of ocean roar, antique radio and television static and my own heartbeat as loud as Poe’s Telltale heart. I lay there on my bed staring up, as even rolling over to get out of bed can take ten [...] continue the story