Adam’s Dad

My name is Adam and I am 11 years old. I also have a brother Ian, who is 13 and an older sister named Karen. My Dad got ALS four years ago and now he is in a wheelchair and he can hardly talk at all.

The school that I go to and I, want to raise money for research to find a cure for my Dad. We used to do so much stuff together. I can’t remember very well when he could walk or use his hands.

We used to play road hockey together, but now he can only be the goalie in his wheelchair. Please help me to find a cure. Maybe if I could get enough money then the doctors could fix Dad so we could do everything together again.

The ALS Society asked if I could tell the world one thing about ALS what would it be. It is hard to say one thing because there is so much. There is so much that I want to tell people, so if I can only say one thing I am not sure what it would be but I’ll try.

ALS means amyotrophic lateral sclerosis, but to me it can mean something else as [...] continue the story

CdLS Story – Zackery

At the routine 20 week ultrasound, my son Zackery, was not cooperating so they ordered one for the 28th week. The doctor came in and said that the right arm looked like it was winged and that we needed to go for a 4D ultrasound. At 31 weeks we had it done and found out that not only was his right arm was not normal, but he also had heart problems and was small in size. There was also a blockage in the umbilical cord. We started going for ultrasounds twice a week to check the umbilical cord, and started doing any test we could to see what syndrome he had. All the test come back normal.

But at an ultrasound at the 36th week, we found out that there was barely any flow through the umbilical cord, so they sent me straight to the hospital so they could induce. Zackery was born September 28th. He sounded like a kitten meowing when he cried and he had a head full of hair. He was only 3 lbs 15 oz. They took him to up to NICU for evaluation. Later that day the geneticist came into my hospital room and said [...] continue the story

We Pray for the Day the Government Will Get Involved

By: Elizabeth Ragui, Kenya

I was diagnosed with breast cancer in July of 2004. This experience changed my life. After completing my treatments, I wanted to know more about cancer so I could tell others about prevention, detection and treatment. Although I was not illiterate, I did not know and had not done very much in regard to Self Breast Examination. Therefore, I decided to use my experience to educate the public-especially women-about breast cancer. Within a year, I was trained by Reach to Recovery International (RRI) as a volunteer in breast cancer support. This enhanced my skills and was an eye opener on how much I could do for those affected. I helped them to live a quality life by accepting their new status, overcoming the challenge and regaining self esteem. Breast cancer support was not enough. I wanted to educate the general public about this issue. In a culture where cancer is associated with witchcraft, I set forth to demystify the disease through cancer awareness. It soon occurred to me to address other types of cancer, especially cervical and prostate. Along with other breast cancer survivors, I registered Reach to Recovery Kenya which is affiliated with RRI [...] continue the story