15 Minutes of Fame

I’m sure you’ve heard the saying everyone gets 15 minutes of fame, well here’s mine. The only thing is that I’m already dead. My name is Durwin John Cadeau, I am 26 and I have ALS, Lou Gehrig’s disease. Maybe 15 minutes from now lots of people will have read this and my story will help make more people aware of ALS. I had a funny feeling from the first time I had a cramp in my leg that it was ALS. I remember telling my mom I had cramps and when I started limping on my right leg she would always say, “It can’t be ALS you’re only 26.” You see ALS runs in my family, my grandma, one of my aunts and two of my uncles all died from ALS. I also have an aunt living with ALS right now. My mom thought I was too young and I guess she was praying that I would not have it.

After seeing several different doctors in Timmins, and running lots of different tests, almost everything but ALS has been ruled out. I am scheduled for an appointment with an ALS specialist in southern Ontario who is the head of ALS [...] continue the story

Adam’s Dad

My name is Adam and I am 11 years old. I also have a brother Ian, who is 13 and an older sister named Karen. My Dad got ALS four years ago and now he is in a wheelchair and he can hardly talk at all.

The school that I go to and I, want to raise money for research to find a cure for my Dad. We used to do so much stuff together. I can’t remember very well when he could walk or use his hands.

We used to play road hockey together, but now he can only be the goalie in his wheelchair. Please help me to find a cure. Maybe if I could get enough money then the doctors could fix Dad so we could do everything together again.

The ALS Society asked if I could tell the world one thing about ALS what would it be. It is hard to say one thing because there is so much. There is so much that I want to tell people, so if I can only say one thing I am not sure what it would be but I’ll try.

ALS means amyotrophic lateral sclerosis, but to me it can mean something else as [...] continue the story