Published on Sep 14, 2012
Ethan tells us what its like to grow up with Type 1 diabetes from a very young age. Great and powerful insights for people living with diabetes, their families and health care professionals. This film has been used as curriculum for the University Of Toronto medical program. Funded by The York University Nursing Academy. Directed by Robert Hawke.
Published on Nov 13, 2012
Christine Jonas-Simpson is an Associate Professor in the School of Nursing at York University in Toronto. After the loss of her own baby boy in 2001 she began to focus her arts-based research on how human beings live and transform with loss. She is currently working on a documentary series and is the author of the children’s book, Ethan’s Butterflies.
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I have been avoiding the internet, blogging, and all things online for the past week or so. I have touched in with facebook, and occasionally made sure I didn’t have any important e-mails pending, but mostly I have gone off the grid.
I have also been hiding in my room.
Here is why: my son was just diagnosed with Apergers, OCD, ADHD, ODD, a mood disorder, social phobia, and sensory processing disorders. He may also have an eating disorder. In the last week, I have seen what it is like for a child to lose control and rage without remembering the incident, or even knowing why. I have watched my son struggle to understand why he has to take new medications everyday and what the name/label of Aspergers means. I have learned that I am not alone amongst even my neighbors in dealing with this disorder, and I have cried for the child that I thought I had.
Life was not fun this week, and this blog is about the joy in life. My son was the one thing in our lives that we could count on as being good. My husband and I both suffer from chronic illnesses, my pituitary gland has [...] continue the story
A comic must earn his living as a clown while suffering the ultimate heartbreak.
Anthony Griffith lives in the mountains of California at 5,000 feet elevation in an animal protected community. It’s much different from the inner city of Chicago where he used to live, but he still travels doing stand-up. He says that the overwhelming positive response of him telling his story at The Moth has prompted him to write a one man show and pen other short stories now in development.
This ground-breaking documentary shares what grief is for nurses who care for bereaved families with perinatal loss. This research-based documentary answers the research question: What is the experience of grieving, for obstetrical and neonatal nurses caring for families who experience perinatal loss? Nurses describe the professional and personal impact of grieving, what helps them and how the experience has changed them and help them to grow. The documentary makes the invisible grief of nurses – visible. It aspires to support nurses so they no longer feel alone or isolated in their experiences of grieving, as many nurses can carry the pain and memories of the families’ loss and experiences with them for years.
Jonas-Simpson, C. (Producer) (2010). Research team: Jonas-Simpson, C. (PI), Macdonald, C., McMahon, E., & Pilkington, B.
Funded by AWHONN Canada ; Canadian Nurses Foundation: The Nursing Care Partnership Program (made possible with a grant from the Canadian Health Services Research Foundation). ; Faculty of Health, York University ; Health, Leadership and Learning Network: The Interprofessional Education Initiative, Faculty of Health, York University
To purchase this film, please visit the York University Bookstore.
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