No Hockey? No Problem!

By Dave N.

Imagine that you have to tell your young son that he cannot play hockey with his friends. This son may be around nine or ten years old, and his friends have told him that the hockey they play is non-contact. Imagine how hard it would be to tell your son that he cannot play organized hockey, our national past time, because of a medical condition where an awkward fall into the boards or a fall on a shift could be life-threatening.

I have a bleeding disorder known as hemophilia. My blood lacks a certain protein in the clotting process, Factor VIII, and I need to take this replacement factor intravenously whenever I experience internal bleeding. My medical condition does not allow me to play any intensely physical sports like hockey or football.

When I was around ten, one of my good friends told me about the non-contact hockey league he played in, and I tried to convince my parents to enroll me in the coming fall. Both of my parents told me that they did not think it would be a good idea, but, being a ten year old, I pleaded with them to enroll me. “But it’s non-contact!” I [...] continue the story

Growing up with Crohn’s

Published on May 8, 2012 by SCDPat

My life prior to being diagnosed with Crohn’s Disease and how I managed while growing up. Symptoms, diagnosis and treatments.

My Cousin Kristin

*** Editor’s Note: Mitch was 12 years old when he delivered this speech to his school.

————————————————————————————————————————- Just close your eyes and imagine. Imagine you are in a room at a hospital waiting for the doctor to arrive after a checkup. Then the doctor comes out and says, “Well, I hate to say it but… you have cancer.” Hello teachers, judges and fellow students.

To many of you this is just an imaginary scene. But for many people, this imaginary scene is a reality.

Nine years ago this happened to my cousin, Kristin Malone, when she was only seven years old.

It was May 19th, 1994. She had not been feeling well, so she went for a check up with her doctor. She went back to school that day and my aunt went back to work. They thought everything was fine. Then while at work, my aunt got a call from the doctor’s office. They suspected Leukemia! The doctor told her to take Kristin immediately to the Children’s Hospital in Calgary, Alberta.

Imagine how terrifying that would be! You are in your car, on the way to see if you have cancer or not.

Immediately, Kristin had blood tests, and the doctors had to get a sample of [...] continue the story

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