Perinatal Loss – Open to Hope Radio

Published on Nov 13, 2012

Christine Jonas-Simpson is an Associate Professor in the School of Nursing at York University in Toronto. After the loss of her own baby boy in 2001 she began to focus her arts-based research on how human beings live and transform with loss. She is currently working on a documentary series and is the author of the children’s book, Ethan’s Butterflies.

 

More by Christine Jonas-Simpson

Nurses Grieve Too: Insights into Experiences with Perinatal Loss

This ground-breaking documentary shares what grief is for nurses who care for bereaved families with perinatal loss. This research-based documentary answers the research question: What is the experience of grieving, for obstetrical and neonatal nurses caring for families who experience perinatal loss? Nurses describe the professional and personal impact of grieving, what helps them and how the experience has changed them and help them to grow. The documentary makes the invisible grief of nurses – visible. It aspires to support nurses so they no longer feel alone or isolated in their experiences of grieving, as many nurses can carry the pain and memories of the families’ loss and experiences with them for years.

Jonas-Simpson, C. (Producer) (2010). Research team: Jonas-Simpson, C. (PI), Macdonald, C., McMahon, E., & Pilkington, B.

Funded by AWHONN Canada ; Canadian Nurses Foundation: The Nursing Care Partnership Program (made possible with a grant from the Canadian Health Services Research Foundation). ; Faculty of Health, York University ; Health, Leadership and Learning Network: The Interprofessional Education Initiative, Faculty of Health, York University

To purchase this film, please visit the York University Bookstore.

More by Christine Jonas-Simpson

Why did baby die?: Mothering children living with the loss, love and continuing presence of a baby sibling

Why did baby die?: Mothering children living with the loss, love and continuing presence of a baby sibling captures the profound impact children have on a mother’s grief after the loss of her baby. In this research-based documentary mothers also tell how young children respond to the loss of their baby sibling. Despite the permanence of the physical loss, children continue to connect with their deceased siblings in various ways while creating new meanings of their experience of loss and love which they carry into adolescence.

Funded by Faculty of Health, York University; and the Health, Leadership and Learning Network: The Interprofessional Education Initiative, Faculty of Health, York University

Jonas-Simpson, C. (Producer). (2010)

To purchase this film, please visit the York University Bookstore

 

More by Christine Jonas-Simpson

Ethan’s Butterflies

A Spiritual Book For Parents and Young Children After the Loss of a Baby When a baby dies one of the first concerns a parent has is the impact this loss has on their young living children. It is difficult to know what to say or how to talk about the death of a long-awaited sibling. Ethan’s Butterflies provides a way for parents and professionals to connect with young children who experience the loss of a sibling. This story is written from a young child’s perspective and told by a pink elephant named Emma. Emma describes her deep sadness, anger and fears and poses many questions that children often raise. Emma shows how she and her family learn to live with the loss her baby brother Ethan and how they continue to connect with him in many ways, one of which is a butterfly and another is love.

Excerpts from the book …”One day Momma was very sad and crying. Edgar and I wondered what was wrong? We were scared. Momma and Dadda told us that Ethan died. He was not breathing and his heart was not beating. We looked at our brother Ethan and touched his cold skin. He looked like he [...] continue the story