It is a cultural artifact that we regard medical professionals as authority figures. We expect them to command us and we are expected to obey. Hence the phrase: ‘doctor’s orders’. This relationship does not work for Type 1 Diabetes. It infantilizes the patient, which is the worst possible outcome. A person living with Type 1 needs a team of professional health care providers (endocrinologists, opthamologists, general practitioners, nurses, dietitions, psychologists, social workers, diabetes educators) to help with management of the condition. But the patient needs to be the Captain of that team. Healthcare providers should be trusted advisors, not authority figures. Healthcare providers may have relevant and necessary training and expertise in the science of the condition. I say ‘may have’ because in my experience not every healthcare provider who purports to understand T1D actually does. And a little knowledge, as they say… Many conflate it with Type 2, and seem to think that all diabetes — and all diabetics — are the same. This is one of the things that irritates me the most. As far as I am concerned, Type 2 is a whole different medical condition that is not relevant to my life or my chronic medical condition. The [...] continue the story
By Michelle Lemme
What is wrong with me? Honestly, sometimes I feel as though I’m incapable of not spending money. I think I may have a serious problem with “impulse control” when it comes to purchasing. Do you think I could I be manic?
A friend told me about a website that carries the brand of swimsuit that I really like. I already own one, it’s in great condition. I rationalized that with the amount of time I spend in my suit at the cottage, it would make sense to have two that are comfortable (as opposed to the second one I own, which, impulsively I had to have, even though it clearly did not fit “properly”). In any case, I found the same suit, different color and purchased it for just under $100 including tax and shipping. I made that purchase on February 26, today is March 19, 2012 and I am still waiting on delivery.
I spend, roughly $150 every other month on “supplements” which I purchase online. This has been going on for approximately 6 months. These purchases include PGx, for weight loss, weight maintenance and glycemic control. I have yet to lose more than the six pounds I lost before I started [...] continue the story
After our daughter Regan was diagnosed with Full Trisomy 18 at twenty weeks our lives completely changed forever. The emotions you experience are unexplainable – even to your partner who is going through the same thing. I had been pretty lucky throughout my whole life to manage every challenge I was given. Well, that hot day in July proved to be the end of the control that I thought I had over my life. Here we were receiving the most precious gift two people could ever hope for, and she was going to be taken back. This was inconceivable for a control freak like me. I once told my husband that getting a diagnosis of Trisomy 18 was similar to being told your child has an incurable Stage IV cancer. You don’t know how long you will have this child, and you have to choose how you are going to embrace the time that you do have. There is no right or wrong decision when it comes to deciding what is best for your child because it was all done out of love. Every choice you make following this diagnosis is what is right for your family and your child.
After [...] continue the story