Cooper’s Story

We knew something was wrong during our first trimester they suspected either dwarfism or Down syndrome. We had the amniocentesis done and everything came back normal so the figured some kind of dwarfism. They told us in so many words without actually saying it (abortion) that there was other options and that was a definite no for us.

Then I was carrying to much amniotic fluid so we had to go to the hospital so they could do a reduction of amniotic fluid. That day I was having contractions and didn’t even know it and I was only around 26 weeks. About a week and ½ later my amniotic fluid started to slowly leak so they flew me about 100 miles to Sioux Falls. They gave me medicine to stop the contractions again and I was on bed rest for the next 17 days.

Cooper was born at 32 weeks and he was 5lb. 4 oz and was 17in. long. They rushed him off and after about 4 hours we got to see him. He was on the ventilator and IV’s. They said he probably has some kind of syndrome and that his liver and spleen were enlarged. The geneticist sent off [...] continue the story

Helaina

A documentary about Helaina, and Costello Syndrome