Bride

By Yavora Petova

COUNTRY: Bulgaria

DISEASE: Crohn’s Disease

FORMAT: Drawing/Illustration

ARTIST’S SUMMARY

Figures included represent single and accompanied life experiences compared to the patient’s description.

PATIENT’S PERSPECTIVE

Patient, 26 years old: “I wanted to become a dancer, but I gave up my dream when I was 13 years old and was diagnosed with Crohn’s Disease. My inner world was changing from a volcano of emotions to a black hole. I went through desperation, depression, stress, panic, strict diets and drastic change in my appearance, forced isolation and constant mimicry. Earlier I was living through my feelings, now through the mind.”

About Perspectives

‘Perspectives – Art, Inflammation and Me’ is an initiative that brings together more than 200 artists with patients in more than 40 countries. Together, they have created a series of paintings, sculptures, photos and other artistic expressions that vividly depict — and help others understand — the impact of immune-mediated inflammatory diseases (IMIDs). Inspired by patients’ stories, independent artists and students from a number of art universities created each piece to help more people better understand the burdens associated with some of these chronic and debilitating conditions. In addition to independent artists from all parts of the world, students from more than 15 universities coordinated by the [...] continue the story

I Will Manage Whatever Happens

By Sally Mayne

Medium used: Etching

Artist Biography

Sally Mayne is a Print Media major at the Alberta College of Art & Design. Her current practice focuses on the exploration of understanding personal identity in relation to one’s search for belonging through ancestry, communal landscape and memory. Her work takes shape through an array of mediums, including printmaking, film, audio, installation, and photography. Within this search, her work focuses on both the duality and dichotomy between the past and present, the individual and the shared, and how we choose to navigate those qualities within ourselves.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

In moments where a disease compromises feelings of comfort and stability, the words “I will manage whatever happens”, arise. This image reflects the person’s ability to ground herself by way of finding inner strength through this focused mantra of self-empowerment. The image’s glowing circle and tree-like form symbolize the core of the person’s being; a light that surpasses ailment and reminds her of her complexities and what she is capable of. The wrapping, tumbling texture of the tree speaks to a gathering of love for ones self, despite the identity that the [...] continue the story

“I wished that I had it instead of him.”

By Amy Pon

Medium used: Digital Print

Artist Biography

I am a third year Graphic Design student at the Alberta College of Art and Design. I am particularly interested in print design, typography and photography. For me, design is the combination of desire and creative innovation to better something — especially clarity and coherence of a message. It is always my objective to create pieces that reflect the needs of a patron or client, and to be an instrument in best expressing a message that needs to be heard.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

This piece is a reflection of the person’s experience as the mother of a child diagnosed with Crohn’s. The laundry line symbolizes the warmth and tenderness of a mother’s care. The line is set against a cold, winter landscape that becomes imperceptible as it fades to white. The landscape symbolizes the ambiguous nature of the illness, and the lack of physical control that she has over her son’s illness. In spite of this, there is a quiet strength and optimism.

Using the artist’s words, describe how they felt about this experience

The subject had been diagnosed with ulcerative colitis two [...] continue the story

Sensing Freedom

By Szász Lilla

COUNTRY: Hungary

DISEASE: Crohn’s Disease

FORMAT: Color Negative

ARTIST’S SUMMARY

The patient stands on a hill, half-naked, throwing his head back and opening his arms wide. His half-naked torso reveals the bag which has been fixed to his abdominal wall and which is the only visible sign of his disease. However his position and movement, as he is standing emancipated in the sunlight, suggest not shame but a sense of freedom. The natural landscape and the seemingly endless horizon in the background further deepen the feeling of self-acceptance and honest revelation of the self.

PATIENT’S PERSPECTIVE

“A physician diagnosed my disease when I was 18 years old. He told me that I had an incurable but not fatal disease which could be managed. At the time I thought the doctor alone would only be in charge of my cure. I used my disease as a shield, behind which I could hide and which was a good excuse to feel pity for myself. But a recent turning point in my relationship made me realize that I should accept myself with my imperfection and inner insecurity in order to live a complete life.”

About Perspectives

‘Perspectives – Art, Inflammation and Me’ is an initiative that brings together more [...] continue the story

Me and you Forever, and ever and ever

By Matthew Ng

Medium used: Mixed media

Artist Biography

My practice is characterized by experimentation and challenging the authority which is restriction. I wish to make clear what is restrictive. I believe that humans have a natural tendency to avoid restriction, and by understanding it people can then stay away from it. My goal is to make the world a better place through art, because I believe art has that inherent power. How we tap into that power and how potent it can be is still the one question I explore every day.

Using the artist’s words, summarize the artwork and how they feel it reflects the patient’s moment of meaning

To go through the experience of having an IMID an individual becomes unable to have a regular social life. The side effects may include tiredness, pains and cramps. With this project I tried to represent the death of the individual by creating a memorial monument and surrounding it with flowers. The disease is like an obsessive shadow figure that never leaves you. Its psychosis is undeniable and its mark never leaves you! The burn marks “Me and you Forever” represents the scars left by the disease.

Using the artist’s words, describe how they felt about [...] continue the story