Bowel transplant patient experience

Michael Seres talks about his bowel transplant experience relating it to how and why patients need to be part of the decision making process. He speaks to surgeons, clinicians and doctors at the Intestinal Transplant Symposium held in Oxford in June 2013.

Follow Michael on Twitter @mjseres

Or his blog Being A Patient Isn’t Easy

 

More from Michael Seres

A Partner In Crohn’s

Posted: 22 Jun 2013 11:37 AM PDT

I talk to many people throughout my life that suffer with an IBD, either through Twitter (@MrAwesomeBen), my blog or my local Crohn’s and Colitis UK (Leicestershire & Rutland) charity. These people have become a cruck for me to rely on. They know, pretty much, what I am going through. These people, some of whom are complete strangers, people who I would not recognise if I passed them in the street, are there for me and vice-versa.

I bang on about not suffering alone, especially in this modern era of the internet where a new friendship with someone is only a click away.  You can hide any embarrassment or anxiety behind the computer screen.

I class myself to be extremely lucky in this world. I found love. I found a woman to share my world with, who accepts me for what and who I am.

Granted neither of us knew at the beginning the trouble I would put us through with my diagnosis but I doubt that would have changed a thing. I struggle to remember a time where she wasn’t a part of my life.

Now I don’t want this blog to sound like one massive brag. [...] continue the story

My daily Companion…Crohn’s

I was diagnosed in 2003 after 88 days in the hospital, the physician said he was treating me for ulcerative colitis but thought it was crohn’s so I signed for exploratory surgery.  He said we would take a section of my colon or do an biopsy..let’s try a look, then.  I awoke with an ileostomy, and had 5 more sugeries (not the pig intestine transplant that I’d hoped for or the stem cell transplant suggested) but I no longer have an exit, so this is not reversible.

I’m on Cimzia injections, still deal daily with pain but am grateful for every day that I live well.  He’s now considering TPN for the rest of my life and I’m only 48? Seems drastic, but I met a man on a mission trip in Lufkin, Texas, last summer (while building wheelchair ramps with United Methodist ARMY youth volunteers…he’s in his 70’s and watched his grandchildren grow up for the past 14 years.  I can do this, if I have to!

I hope to be an inspiration to others, I’m a psychologist and getting my doctorate in Autism Spectrum disorders to work toward my future…however, long or short that may be.  My mantra is…I can [...] continue the story

Fighting Crohn’s Disease on a Tandem

Posted: 08 Apr 2013 05:52 AM PDT

Hello to all my Crohnies old and new.  I am sat writing this latest blog while slightly spaced out on pain killers, home off work due to my silly tummy and even sillier IBD.

Over the weekend I helped celebrate my wife’s Grandma’s 90th birthday. This celebration included a lot of party food and subsequently led to a rather upset bowel.

Yesterday saw me struggle with diarrhoea which I tried to control with loperamide tablets (Imodium) then during the night I had really bad cramps which meant I didn’t sleep well and had to call in sick to work (I probably overused the loperamide).

As I’ve mentioned before, calling in sick to work is something I try not to do too often but sometimes there is no choice.

This is just a usual weekend for me and my Crohn’s and it isn’t even at its worse. It can be a horrible disease to have to live with. It is incurable. It can be suppressed by medication but not forever. You are always looking over your shoulder; waiting for Mr Crohn’s to return.

Because of this disease and its sister, Colitis, a charity called Crohn’s and Colitis UK was set [...] continue the story

Jordyn’s Art Gallery

Jordyn is a junior at NYIT University majoring in Art & Computer Graphics. She is a 2007 recipient of the UCB Crohn’s $10,000 scholarship for her academic achievements and perseverance through her disease.

 

The Foundation for Nutrition and Inflammatory Bowel Diseases in Children, Inc. (IBD) was formed to raise awareness and foster further research in nutrition and growth factor interventions currently available to patients with IBD.

If you would like further information regarding this research please contact the NIBD.

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