Michele is Gut Inspired

Published by GutInspired on Jun 27, 2011

Gut Inspired is a group of Canadians living with Crohn’s disease and ulcerative colitis who have joined forces to increase the awareness of inflammatory bowel disease (IBD) in Canada, offer support for individuals living with IBD and provide personal experiences to assist others living with IBD learn how to better manage their disease.

Rob Hill Climbs Mountains

In 1994, Rob was a fit, healthy 23-year-old, an amateur runner and athlete. Until that time, he had never really been sick. He didn’t even have a regular doctor. When the illness started, it progressed rapidly. Daily diarrhea. Sustained stomach cramps. The diagnosis was Crohn’s disease, an inflammatory condition of the digestive tract. It got worse, and his weight plummeted from 185 to 105 pounds. After a year and a half, it became clear that his large intestine, his colon, needed to be removed.

Not long after surgery, Rob started getting active again, running and eventually competing. In his lowest moment, he had not been able to climb the stairs in his house so regaining his fitness became a very personal challenge. Recovering mentally would take longer.

When Rob was ill, he learned an aunt of his also had Crohn’s, a fact she had never shared, even with close family members. Through her experience, and his own, Rob realized how destructive the stigma surrounding intestinal diseases and having an ostomy can be. How it can isolate you, keep you from reaching out and getting help. Rob decided he had to do something about it.

The Seven Summits campaign, which we call “No Guts [...] continue the story

TEDxEast – Ari Meisel Takes on Crohn’s Disease

May 9, 2011 Ari Meisel trains his body to conquer Crohn’s disease.

E-Patient Video Profile for Medicine X

I am extremely floored to be the profiled e-patient in this six-minute video on peer-to-peer healthcare. Larry Chu, MD, the organizer of Stanford Medicine X hired a very talented videographer (Theo Rigby) to shadow me for a day and interview me. I talked about what it has been like to live with Crohn’s Disease, and how I was inspired to build Crohnology to connect patients with it so we can find new medical discoveries.

– Sean Ahrens

Great pain and expectations

November 30, 2011

Being involved in the Twitter community and following numerous others with Crohn’s and like belly troubles I have realized I am not alone when it comes to pain and the great expectations that goes along with having a chronic illness.

I have pain every day. My body hurts. My joints hurt. My belly hurts. My nether regions hurt from going to the bathroom ALL the time. Every now and then I am lucky enough to get my hands on some pain medication which, more often than not, doesn’t really do much to relieve the pain anyway. So sometimes I, like others with Crohn’s, have to go to the ER to get some heavy duty drugs to get a little relief. This isn’t usually met with kindness from the ER staff though. I know I personally have been labeled as “narcotic seeking” for an occurrence when my very own Dr. GI sent me there for pain management. Since three of the four major hospitals share electronic records in my area I am pretty screwed out of going to the ER for pain management now. I am usually immediately told there is nothing they can do for me. And if they [...] continue the story