My Flesh and Blood 05/06

My Flesh and Blood is a 2003 documentary film by Jonathan Karsh chronicling a year in the life of the Tom family. The Tom family is notable as the mother, Susan, adopted eleven children, most of whom had serious disabilities or diseases. The film itself is notable for handling the sensitive subject matter in an unsentimental way that is more uplifting than one might expect. It was nominated for and won several awards, including the Audience Award and the Director’s Award at the Sundance Film Festival.

My Flesh and Blood 06/06

My Flesh and Blood is a 2003 documentary film by Jonathan Karsh chronicling a year in the life of the Tom family. The Tom family is notable as the mother, Susan, adopted eleven children, most of whom had serious disabilities or diseases. The film itself is notable for handling the sensitive subject matter in an unsentimental way that is more uplifting than one might expect. It was nominated for and won several awards, including the Audience Award and the Director’s Award at the Sundance Film Festival.

Kristin

Have you ever eaten way too much and gained a few pounds? Or come across a child unwilling to eat their vegetables or are just too picky about their food? I have two words to say…“I WISH!”

Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a relentless disease that does not stop at just compromising the skin. Sadly, it also affects mucosal membranes like the mouth, throat and esophagus which makes eating and EVEN drinking a chore. Eating is a distant memory for me as well as the anticipation of savoring my mom’s dinners, as the delicious aroma fills the house.

Food has always been an important part of my life. As a baby, an eye dropper was often used because sucking was just too painful for my raw, blistered tongue and mouth. As a young girl, I remember sitting for hours on the couch with my mom playing the tasting game. Wiling away the time when stricken with corneal abrasions, delighting in sampling the tiny morsels of food that she took the time to prepare and arrange. The g-tube saved my life at age nine weighing in at 42 pounds but swallowing struggles progressed. Who ever thought that a pureed breaded pork chop, [...] continue the story