Life is Hard

I have been avoiding the internet, blogging, and all things online for the past week or so. I have touched in with facebook, and occasionally made sure I didn’t have any important e-mails pending, but mostly I have gone off the grid.

I have also been hiding in my room.

Here is why: my son was just diagnosed with Apergers, OCD, ADHD, ODD, a mood disorder, social phobia, and sensory processing disorders. He may also have an eating disorder. In the last week, I have seen what it is like for a child to lose control and rage without remembering the incident, or even knowing why. I have watched my son struggle to understand why he has to take new medications everyday and what the name/label of Aspergers means. I have learned that I am not alone amongst even my neighbors in dealing with this disorder, and I have cried for the child that I thought I had.

Life was not fun this week, and this blog is about the joy in life. My son was the one thing in our lives that we could count on as being good. My husband and I both suffer from chronic illnesses, my pituitary gland has [...] continue the story

The Vicious Financial Cycle of Chronic Illness

There comes a time in the life of a person with a chronic illness when a vicious cycle begins and the consequences of their temporary or permanent inability to work due to their chronic illness is compounded by their mounting medical bills. They get sick, so they can’t work; but they need to work, to pay for being sick. As the chronic illness becomes more persistent, it becomes increasingly difficult to stay ahead of this cycle. This is when the availability, or unavailability, of money and wealth becomes the sole determining factor of survival and happiness. On second thought, survival is not so much affected because of the mitigating and temporary stop-gaps provided by medical insurance and credit cards. However, living with the obligation to pay for these outstanding staggering and always increasing medical costs represents the “difference” between mere existence and truly living life and thus experiencing even occasional happiness. If you do not have the money and wealth necessary to keep up with this chronic illness cycle, some look to Bankruptcy as a strategy for negating this “difference.” But if the illness is indeed chronic in nature and/or incurable, there will [...] continue the story