My name is Georgie and I have Prader-Willi syndrome (PWS). Some of you may know me, but you might not know the love and patience that have been required by my Mom to get me where I am today. Please take a minute out of your busy day to hear my story. Babies like me everywhere need your help.
When I was born I couldn’t move or cry or even suck very well. I was like a rag doll. The doctors called me “failure to thrive” and “content to starve,” but Mommy called me a miracle. I slept all the time – nearly 24 hours a day. My mom had to set the alarm to get up to feed me because I was too weak to cry. I couldn’t hold my head up or stay awake to eat. When other babies smiled back at their moms, I couldn’t. I didn’t have the muscle tone to smile yet. My mom had to make it through those early months knowing that I loved her, but I couldn’t show it. I know that was hard on her, but she loved me and insisted that I got the nourishment I needed. Sometimes it took an [...] continue the story