Michael Seres – Wed 21st Dec @ 3.49pm

(Editor’s Note: This is Michael’s first blog since the transplant).

So let me recap about life from my perspective since 8th October.

Somehow I seem to have blogged a day after my op from intensive care. In truth I have absolutely no memory of doing that at all. In fact I have no real recollection of the first few days post transplant at all. Obviously I have been told all about the care given to me and the team that looked after me but I feel terrible because I don’t even remember who did what. My last memory before the op was of that walk to theatre. The most nervous, scary 100 yards of my life. I’m not really sure how I kept it together or even if I did but I do remember giving my wife a kiss goodbye walking through the doors and just wanting to cry as I physically shook with nerves. I remember then climbing on to the table in the anaesthetists room and feeling freezing cold. I kept saying can you just put me to sleep but it was about 30 mins before that could happen. Sticky pads that linked up to various monitors were stuck to [...] continue the story

The Man Who Couldn’t Eat

By Jon Reiner

This feels so illicit. And stupid. But really, I must lick this french fry. I’m not asking to eat it, mind you, that wouldn’t be good. I just want to lick it. Taste its salt. I cower in the kitchen, hiding from my wife and boys, who are out there, on the other side of the door, enjoying a sumptuous dinner, like eaters do — devouring what’s delicious, picking at what is not, saving room for dessert — while I starve.

Yes, I’m starving. There’s been nothing for two months now. No food, no drink, nothing in my mouth except the air I keep sucking. It would be plain to say the hunger is driving me mad, because it is. I crave food more than sex. The smell and touch of food can drop me to my knees. Food left me suddenly, in the chaos of emergency surgery, and, empty of food, I think about it constantly, an obsession that magnifies the ordinary into the surreal. A simple french fry is a wonder, an uneaten crust of bread salvation; something as unattainable as a fried egg, life itself. This trance is not healthy, or normal, but then those two [...] continue the story

Emergency Supplies

22 Apr 2012

Whenever I head out, I try and make sure I have my essentials. As I have explained before, as an IBD sufferer you always have to be prepared. A night out on the town is no different; in fact it probably needs a little more planning especially if you intend to have an alcoholic drink or two.

Alcohol does have an effect on my body and that can make me a little tense and apprehensive. I probably shouldn’t drink alcohol but there are so many things my Crohn’s Disease stops me from enjoying, so alcohol, even with its evils, can offer some light relief. Cream buns have a similar effect but they do offer a small amount of yummy escapism!

I try and take as many useful items as I can carry. Winter is much easier for doing this than summer, as the cooler weather means more clothing, especially big jackets with plenty of pockets. The idea is to be as prepared as possible for whatever troubles you may find yourself in, especially when going out to the pub. Generally drunk men (not sure what ladies toilets are like) do not have the greatest toilet etiquette.

I make sure I have [...] continue the story

Growing up with Crohn’s

Published on May 8, 2012 by SCDPat

My life prior to being diagnosed with Crohn’s Disease and how I managed while growing up. Symptoms, diagnosis and treatments.

Gut Inspired: Rob on being an advocate

Published on Apr 18, 2012 by GutInspired

Rob Hill is a member of Gut Inspired, living with Inflammatory Bowel Disease (IBD; Crohn’s Disease). He is sharing more about his experiences advocating for himself and others as well as actively managing his disease with his health care team. Rob knows the importance of communication and can better manage his symptoms because works together with specialists he trusts. Rob Hill works with the Intestinal Disease, Education and Awareness Society (IDEAS) raising awareness and sharing his experiences through Gut Inspired.

Please share this video with others who may live with IBD and encourage them to talk and learn more about their disease. To learn more about Gut Inspired and Rob’s story, please visit www.facebook.com/gutinspired