I am a caregiver of someone with MS

By Kent Pollard

I think that part and parcel of coming to terms with becoming a caregiver, is acknowledging that there is going to be change, change that will almost always be difficult at the start. Change that we have to accommodate and embrace if we are going to have the best life we are capable of having.

My wife, Victoria was diagnosed with MS on October 5th of 1998, three days after I started a new job. At the time, caregiving didn’t even enter into my experience. We were a couple and there were things that we did for each other, none of them out of the ordinary. For the first 4 or 5 years after the diagnosis, caregiving was a minor, and completely unrecognized, part of my life. Victoria experienced unusual fatigue, and we worked through some initial anger and bitterness toward the world, but she continued to work and our lives were, or at least, my life was, not particularly disrupted. However, the disease state progressed, slowly but inexorably until about four years later when it, and the accompanying symptoms had become much more pronounced and began to creep into our day-to-day lives. Victoria was more tired than ever. [...] continue the story

Toughing Up

By MickeyMic October 3, 2011

I heard those words- “You have MS”, and I found myself making that choice- to accept, to learn, to strive, to “tough up” and take it on. “Toughing up” has become a daily endeavor, and I accept it. I heard those words- “Your MS has progressed, and you now have Epilepsy”, and I absorbed the shock the only way I knew how- I “toughed up” and moved forward as best I could. “Toughing up”- it’s a constant companion. I heard those words- “You have breast cancer”, and it stopped me dead in my tracks- until my constant companion tapped me on the shoulder. Fighting the good fight demands an attempt at “toughing up”, even if you don’t do it as gracefully as you hoped you would. In living with MS, “toughing up” is what we do- every day and at any given moment. “Toughing up”- it’s what we do. We never know what is coming next, but what ever it is, I’m on the ready. I’m “toughing up”!

28 Years and still mobile………

By Jackie October 13, 2011

I reached a milestone of sorts this month!!. I made 28 years with what I thought was a death sentence when first I found out I had MS. You see in 1983 there was “NOTHING” but steroids to treat the symptoms not the actual disease and I just figured I would never see 40 let alone 50 and next month I will turn “50″ and I am so looking forward to it. While it has not been easy and the last few years have been trying because over the years MS has taken something hear and there from me but never long term, but in 2009 it took my ability to think clearly, which is called cognition or lack there of and that was major for me because I thought I had this MS and working thing figured out. You see I went back to school and obtained a Masters degree so that when mobility became such that could no longer physically go to work, I could teach online but that came to an abrupt halt when I found new employment and had trouble passing test during training. If asked I could tell you more than you [...] continue the story

Best Things About Being Disabled: Top Ten

By R. Franklin August 26, 2011

Before I start this list, I would like everyone to know that I am not making fun of or minimizing the difficulties of being disabled. Anyone in their right mind, and most of us who aren’t understand that living with a disability can be very difficult. I am disabled, so I have freedom to talk about this. Remember, laughter makes everything easier…except maybe eating with your mouth closed.

#10. Handicapped parking – Imagine trying to find a parking spot when someone takes the one you were about to get. Suddenly a handicap spot opens up and you can hang your placard, laugh your best villain laugh, and stick your tongue out at the driver who is now parked several cars behind you.

#9. People are nice (in general) – Our dog got out of the back yard and knocked over a little neighborhood girl (another reason cats are better). When the mom came over to yell at us and I came to the door in my wheelchair, she blushed and started explaining that she just wanted to make sure that the dog wasn’t mean and her kids didn’t need to fear it…silly kids. Now, I don’t recommend letting [...] continue the story

Montel Williams: I’ll use pot until I die

Montel Williams, who suffers from MS, is making rounds in New York trying to legalize medical marijuana in the state.