Jordyn’s story

At the age of 12, Jordyn Shapiro was diagnosed with Crohn’s disease. Her symptoms were chronic abdominal pain, diarrhea, bloating, gas attacks, vomiting, fevers, skin rashes, anemia and indolent sores in her mouth. She had lost 30 pounds in 6 months and had stopped growing resulting in a 2-year growth delay as well as a failure of normal teeth development.

At the beginning of treatment, she was prescribed steroids and chemotherapy medication that she willingly took for one year, despite the fact that she showed no improvement at all. Her condition worsened, and, to make matters worse, her hair began to fall out. She had missed 60 days of school and was now becoming reclusive.

Jordyn had been admitted to the hospital several times for dehydration and after her last hospitalization she was recommended to a clinical nutritionist, Dr. Melvyn Grovit. Dr. Grovit was keenly aware of Jordyn’s plight, as he himself had experienced the ravages of Crohn’s disease as a child. Dr. Grovit had developed a nutrition protocol over the past 30 years and introduced it to Jordyn. Dr. Grovit then teamed up with Dr. Alfred Slonim, Jordyn’s endocrinologist, who had also been working with Crohn’s disease patients from a growth [...] continue the story

Jordyn’s Art Gallery

Jordyn is a junior at NYIT University majoring in Art & Computer Graphics. She is a 2007 recipient of the UCB Crohn’s $10,000 scholarship for her academic achievements and perseverance through her disease.

 

The Foundation for Nutrition and Inflammatory Bowel Diseases in Children, Inc. (IBD) was formed to raise awareness and foster further research in nutrition and growth factor interventions currently available to patients with IBD.

If you would like further information regarding this research please contact the NIBD.

More NIBD Stories

Ignored at a Support Group for Saying a Word!? (Nutrition)!

In the year following my daughter’s diagnosis of Crohns disease also called Inflammatory Bowel Disease (IBD), we had a surprising experience! As a mother of a child with a chronic illness the first thing I did was try to educate myself as much as possible. Twelve years ago, when my child was diagnosed with this debilitating illness, I searched the internet to learn all I could about IBD. The next thing I did was join IBD organizations to learn and show my support to find a cure!

My daughter, Jordyn was 12 years old at the time she was diagnosed. Her symptoms were chronic abdominal pain, diarrhea, bloating, gas attacks, vomiting, fevers, skin rashes, anemia, joint pain, and indolent sores in her mouth. She had lost 30 pounds in 6 months and had stopped growing resulting in a 2-year growth delay as well as a failure of normal teeth development.

At the beginning of treatment, she was prescribed steroids and chemotherapy medication that she willingly took for one year, despite the fact that she showed no improvement at all. Her condition worsened, and, to make matters worse, her hair began to fall out. She had missed 60 days of school and was [...] continue the story

Girls-With-Guts: Megan’s Story

When the Little Things Make a Big Difference

My college campus wasn’t very big. It only took 10 minutes to walk across the entire thing, and less to go from class to class. But even so, I remember running out of one class to use the nearest bathroom, and walking, defeated, to the next building for my next class, just to have that dreaded feeling of urgency hit again.

Junior year of college was one of the hardest times I have had in dealing with my IBD. I had been diagnosed just two years prior, and I had had it for long enough to accept that I was never going to be healthy again. But since I was diagnosed at essentially the beginning of my college experience, I didn’t know enough about sharing it with other people, and I didn’t have any good friends to be supportive. Basically, every day of junior year was just dealing, trying to get through one day at a time, and hoping the next one would be better. This included many days spent missing class, staying near a bathroom, and visits to the doctor or ER.

Although I was unsure of how both my disease and my college career would turn [...] continue the story