Thank you, Waylon Jennings, for that gem! I think I’d make one minor tweak to it to fit my life now: I’ve always been crazy, but Xanax keeps me from going insane. So far most of my tests and come back clear, negative, etc. I have one elevated titer for a virus. We won’t be able biopsy and test for this one unless or until I have another big breakout. They’ll need to biopsy a large lesion. Catch 22! I get to find out if this is the source of my Sweet’s (yea) if I can have another bad outbreak (boo). [Insert foul language here.]!
Let’s make one more revision: I’ve always been crazy, but Xanax almost keeps me from going insane. It’s incredibly frustrating dealing with such a rare disease.
It’s not the doctors’ faults. So little is known about it, they don’t have anything to go on. So, I get to “donate” blood to my cause own cause quite often. I even have “track” marks from all the “sticking.”
Bethesda truly has been wonderful with the exception of just a small few. I didn’t think I’d be saying I’m glad I’m here if you asked me 3 months ago. I am saying it now. I am very glad [...] continue the story