PARKINSON’S MOVEMENT is a research-focussed, patient-driven platform for information and canvassing within the Parkinson’s community. Informed bloggers, webinars, polls, debates and so much more create a patient-focussed hub.
Soania Mathur’s early-onset Parkinson’s diagnosis has allowed her to live more in the moment in her role as a mother, wife, and physician. Soania explores how Parkinson’s has affected her children and how disclosure is crucial for someone diagnosed with Parkinson’s.
January 17, 2012
Dr. Soania Mathur is a family physician who retired from practice due to Parkinson’s disease. She is a speaker at patient-directed conferences for the Parkinson’s Society of Canada and is a resource for education projects. She serves on the Patient Council of The Michael J. Fox foundation for Parkinson’s Research and is an advisor to The Brian Grant Foundation.
More from Soania Mathur.
This blog was first published following the World Parkinson’s Congress held in Glasgow, September 2010…………. It was then republished about a year later, with a lengthy addition tagged on to the end about challenging my specialist on his views about DBS. This is – more or less – the original version.
Two weeks prior to [originally] writing this my elder daughter sat exams to win a Bursary at a well known independent girls’ school. She was one of a handful of girls chosen to sit these (well, two handfuls to be precise ….). A fantastic achievement as she was selected from a number who had applied. Having taken the approach that she was going to “get by” on her natural ability, of which she has plenty, she took the decision not to do any prep work. My husband and I tried, but failed, to get her to “knuckle down”. Elise’s approach to such matters is that she works hard at school, therefore why should she work hard at home. Being reluctant to make a big fuss over the issue, we took the path of least resistance and didn’t force the issue. [On top of that, I had also spent [...] continue the story
This blog was originally posted in February 2011 shortly after I took early retirement due to ill health from a career in banking spanning 23 years. It is one of my personal favourites, and I hope you enjoy it too…..
Having woken at 3:00 am in pain with my neck and shoulders, I have found it impossible to get back to sleep, and after an hour of tossing and turning have decided to get up and write about something that has been on my “blog log” (where I keep a record of my ideas) for quite a few weeks. The reason for my inability to get back to sleep is not just pain (although that has a lot to do with it sadly), but also worry over my younger daughter. It has been a really tough week for the Collinge family, as she was physically attacked by another child, for the third time, and we have found it necessary to remove her to another school for her own personal safety. I am only thankful there was no permanent physical injury done. But to say that I am disappointed that we have had to take such action is an understatement [...] continue the story