This is a cautionary story of how it can be expensive in time as well as money to know too little about your own health and treatments.
The 400 visits in the title is what it is because for seven years I went to the doctor’s office for weekly injections of methotrexate. Year after year I dealt with snow, rain, ice storms, paying for parking, dealing with the difficult receptionist and wasting time waiting. The only positive side is that I now know my doctor very well.
After that endurance contest I can say that for me the biggest advantage to being involved in a clinical trial was a conversation with a trials nurse who said “Why aren’t you doing the injecting yourself?” A classic “Had I But Known” was my answer. If I had had the faintest hint that I could have been doing it on my own I would have. This author was one of the queens of the HIBK (Had I But Known) genre That marked the last time I had someone else take care of my injections. Now with social media, people who are connected to other patients can find that answer much faster than I did.
Thinking of how many [...] continue the story