patient story | Patient Commando

The next revolution in health care? Empathy

Posted on February 2, 2016 by TEDx Wilmington

Published on Sep 8, 2014

This talk was given at a local TEDx event, produced independently of the TED Conferences. Paul Rosen, MD, a pediatric rheumatologist, serves as the Clinical Director of Service and Operational Excellence at Nemours. He received a masters of public health degree from Harvard University and a masters of medical management degree from Carnegie Mellon University. He was named ‘One of the First 100 Innovators’ by the U.S Federal Government Agency for Healthcare Research and Quality. Dr. Rosen’s interests include patient-physician communication, family-centered care, and the patient experience. He teaches medical students about improving the patient experience, and he serves as the faculty mentor for the physician executive leadership program for medical students at Jefferson Medical College. He is also a volunteer faculty member at University of Central Florida College of Medicine.

Tagged Under: choice, communication, empathy, patient experience, patient story, shared decision making, tedx

Health Quality Transformation 2015 – Judith John

Posted on December 9, 2015 by Health Quality Ontario

Published on Nov 25, 2015

Judith John delivers a powerhouse presentation on transforming care by combining her patient experience with an inoperable brain tumour with that as a hospital executive to provide unique insights. Judith John’s career spans all aspects of communications, marketing and public affairs, with an extensive background in arts, culture, not-for-profit, health and social services.

Ms. John is active within the health care sector, having served as Vice President of Communications and Public Affairs at the Hospital for Sick Children and as Vice President of Communications and Marketing at Mount Sinai Hospital and Foundation. She also volunteers with Toronto Western Hospital, Princess Margaret Cancer Centre, University Health Network and Mount Sinai, concentrating on the patient experience, partnerships and communications.

A patient advisor for UHN’s Partners in Care program, Ms. John is a trained Patient Partner. She is part of the Province of Ontario’s Phoenix Project on education and patient care, and works with Patients Canada. She was on the 20th anniversary awards selection committee for The Change Foundation regarding initiatives around patient and family-centred care. She also volunteers with Health Quality Ontario, and is currently working on government relations for the Council of Academic Hospitals Ontario.

Ms. John has extensive community experience, having [...] continue the story

Tagged Under: brain tumour, communications, HQT2015, Judith John, patient story, transformation

Being a Patient Past Present & Future

Posted on November 28, 2014 by Kristen Knott

By Kristen Knott

Written November 21, 2014

A year ago today I received my 6th and final chemo infusion. One breast, hairless head to toe, fatigued, sore and emotionally drained, I was fed up with being a cancer patient. The light at the end of the tunnel seemed almost out of view.

Now a year later, the anniversary has passed uneventfully with the usual mix of entertaining teenagers, both off for a PA day, addressing client emails and meeting a deadline for my Humber creative writing course; yet the entire time I quietly celebrated that I am no longer a patient. I question however, if I will ever stop fully being a patient in my head, as the role has profoundly changed who I am, and how I now approach my life.

As a cancer patient there was a sense of achievement and pride as I met and endured each treatment milestone, although I struggled with the lack of control over the present and future state of my health, it forced me to look hard, at my own mortality, an utterly terrifying notion to me. My body had been hijacked by cancer and I was at the mercy of this invisible enemy that only [...] continue the story

Tagged Under: breast cancer, compliance, Kristen Knott, patient story

Jason Davis

Posted on November 28, 2014 by Stories That Heal

Gang consultant Jason Davis on the impact of violence, on suicide, schizophrenia and bipolar diagnosis.

Tagged Under: aftrican-american, bi polar disorder, gang, mental health, patient, patient story, schizophrenia, suicide

APPENDICITIS I + II: Monday August 25, 2014

Posted on August 25, 2014 by wholisticlab

I experienced appendicitis twice – which is physically impossible anatomically except in the case of attempting 2 routes of healing. My first choice was to be treated by an intravenous deluge of antibiotics, as it was presented? sold? to me as an effective alternative to an appendectomy, appealed to my greatest fear (the profound invasion and alteration of my body) and, I knew how to repair my constitution following this therapy. Upon recovery, I became consumed with the creation of a document dedicated to the improvement of the patient experience in the area of abdominal conditions and surgeries. Based on my letter, I was invited to present my exhaustive holistic document of RECOMMENDATIONS to select management of the 14th Floor.

Approximately 6 weeks later, I sat in a play and began to experience familiar pain. 19 hours later, I was surrounded by lights and stainless steel, counting down from 10.

There is, in fact, a 3rd route of healing in the facing, and living through, of one’s greatest fear.

………………………………………………………………………………………………………….

Mr. Joseph LebovicMount Sinai HospitalJoseph and Wolf Lebovic Health Complex600 University AvenueToronto, ONM5G 1X5August 19, 2011

Dear Mr. Lebovic,

I wanted to tell you about my recent experience at Mount Sinai, having landed in an ambulance [...] continue the story

Tagged Under: advocacy, andrea shewchuk, Appendicitis, patient story, safety