All For One…

By Soania Mathur

Once again it was a restless night but worth it this time. I got home around 1:30 in the morning wired on a combination of caffeine and Sinemet. The insomnia that ensued was inevitable but I had such a great night eating, chatting, laughing and playing cards with my girlfriends that I have no regrets. It was our monthly girls’ poker group, one of many get togethers that I look forward to on a regular basis. Be it lunching out, dinner at a friend’s place, movie night or simply going out for a coffee, having that social connection is invaluable to me. With three kids and a million duties to fulfill, it’s not easy to find those opportunities but it is something I try and make time for.

Let’s be honest, we are all social beings, granted some of us more than others, and our social network can provide us with the distraction that we sometimes need to escape from our daily stress. It’s nice to lose yourself in the sometimes mindless chatter and not have to think about some new symptom that has cropped up, how screwed up your meds seem or worry about what the future holds. [...] continue the story

Life is Not a Dress Rehearsal (or the Perils of Procrastination)

By Jo Collinge

This blog is dedicated to the memory of my huband’s nephew, Christopher, taken from this life at the age of only 32.

When I first met the late great Susie Sharman she was wearing a t-shirt which had emblazoned across it “Life is Not a Dress Rehearsal”. How right she was – Susie had more than her fair share of trials and tribulations over the following 20 years of our friendship, but she always lived every day as if it were her last, until her last day came when she slipped peacefully away.

I’m certainly guilty myself of “getting it wrong” over the years – but its from our mistakes that we learn and hopefully move on……Its not doing anything about those mistakes where problems can manifest and at times fester. Tim, having “divorced” himself from his immediate family, had not seen or spoken to his sister, Tanya, or his niece or nephews for five years. At the time, I decided not to get involved but did say to my sister-in-law to keep in touch if she ever needed anything. Since then, we haven’t spoken as such, but more texted each other every now and then, including when I was [...] continue the story

The Man Who Couldn’t Eat

By Jon Reiner

This feels so illicit. And stupid. But really, I must lick this french fry. I’m not asking to eat it, mind you, that wouldn’t be good. I just want to lick it. Taste its salt. I cower in the kitchen, hiding from my wife and boys, who are out there, on the other side of the door, enjoying a sumptuous dinner, like eaters do — devouring what’s delicious, picking at what is not, saving room for dessert — while I starve.

Yes, I’m starving. There’s been nothing for two months now. No food, no drink, nothing in my mouth except the air I keep sucking. It would be plain to say the hunger is driving me mad, because it is. I crave food more than sex. The smell and touch of food can drop me to my knees. Food left me suddenly, in the chaos of emergency surgery, and, empty of food, I think about it constantly, an obsession that magnifies the ordinary into the surreal. A simple french fry is a wonder, an uneaten crust of bread salvation; something as unattainable as a fried egg, life itself. This trance is not healthy, or normal, but then those two [...] continue the story

Gut Inspired: Rob on being an advocate

Published on Apr 18, 2012 by GutInspired

Rob Hill is a member of Gut Inspired, living with Inflammatory Bowel Disease (IBD; Crohn’s Disease). He is sharing more about his experiences advocating for himself and others as well as actively managing his disease with his health care team. Rob knows the importance of communication and can better manage his symptoms because works together with specialists he trusts. Rob Hill works with the Intestinal Disease, Education and Awareness Society (IDEAS) raising awareness and sharing his experiences through Gut Inspired.

Please share this video with others who may live with IBD and encourage them to talk and learn more about their disease. To learn more about Gut Inspired and Rob’s story, please visit www.facebook.com/gutinspired

Letting the Grass Grow Under My Feet

By Jo Collinge

I hate to admit it, it has been quite some time since I last blogged…. in fact I had originally started this blog two weeks ago, but after what has not been such a good day in the Collinge household I decided to sit down and make an effort to finish and publish before I go to bed.

I have been so busy I haven’t had a moment to draw breath, let alone sit down at my pc and write anything – including sending an email to my oldest and dearest school friend to wish her a happy birthday a few weeks ago. Well – that is a lie about the blogs – I have sat down and started a few over the last month, but have never actually succeeded in finishing any.

This blog was originally started at the end of a very frustrating week for me – I had been experiencing weird things going on with my left foot, where it keeps rolling unnaturally on to its outer edge, with my toes going in to spasm and the pain of muscle cramp frankly worse than childbirth. It seems to happen just before my meds are due, especially [...] continue the story

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