Life Love Laughter and Learning

By Jo Collinge

I Love my Life, especially when it is filled with Laughter. I’m Learning to Live my Life with Parkinson’s, to challenge it as well as accommodate all the uncertainties that it brings.

It’s been quite a while since I have woken up in the middle of the night with a blog there in my head, ready and waiting to be written. When that happens, I have to get up, log on, and type it up before I forget what I want to say. The result is this, and replaces its former version, originally drafted about a week ago but not published, and titled “Exercise and Parkinson’s”. How dull is that, and my boring rambling spiel on the benefits of exercise and endorphins has been well and truly ditched in favour of this.

A couple of weeks ago, I woke, as usual, stiff and in pain, somewhere between 5:00 and 6:00 in the morning, in urgent need of a call of nature. Having managed to lever myself out of bed, thanks to the re-positioning of my bedside cabinet about a month ago, I shuffled off to the bathroom, stopping off en-route to the loo for my usual early-morning bleary-eyed inspection in [...] continue the story

Sleep – Is It Overrated or Am I Just Stubborn?

By Soania Mathur

Well here I am, 3:40 AM, up and out of the warmth of my bed – yet again. It’s been years of sleep issues of every sort. Sometimes it’s initial insomnia where I’ve spent countless hours staring into the darkness, reading into every shadow, tossing and turning, trying to find a comfortable position, trying not to wake my husband, trying not to look at the clock which seems to mock my difficulty. Other nights I do fall asleep, either because I haven’t truly slept in literally days or because I’ve given in and actually taken yet another pill, this one designed to make me sleep for a few precious hours. I don’t often do this, mostly due to my own stubbornness, the desire to will my body to do what it’s supposed to do without the need for something outside of me to do the job. This obstinate stand usually frustrates my husband and my oldest daughter whose plea “Mama, what’s one more pill especially if it helps?” makes complete logical sense. Yet to me that one little pill (or the three it takes now) represents yet another way this disease has taken away my ability to control [...] continue the story

This is PARKINSON’S MOVEMENT

PARKINSON’S MOVEMENT is a research-focussed, patient-driven platform for information and canvassing within the Parkinson’s community. Informed bloggers, webinars, polls, debates and so much more create a patient-focussed hub.

A Patient’s Perspective: Soania Mathur

Soania Mathur’s early-onset Parkinson’s diagnosis has allowed her to live more in the moment in her role as a mother, wife, and physician. Soania explores how Parkinson’s has affected her children and how disclosure is crucial for someone diagnosed with Parkinson’s.

January 17, 2012

Dr. Soania Mathur is a family physician who retired from practice due to Parkinson’s disease. She is a speaker at patient-directed conferences for the Parkinson’s Society of Canada and is a resource for education projects. She serves on the Patient Council of The Michael J. Fox foundation for Parkinson’s Research and is an advisor to The Brian Grant Foundation. More from Soania Mathur.

Mixed Cursing: January Update

January’s installment of Peter Dunlap-Shohl’s graphic novel that shares his personal experience with Parkinson’s Disease.

More Mixed Cursing