Dante: Born with Prader-Willi Syndrome

The video is a journey of our life over the past 7 years and what life is like living with Prader-Willi Syndrome. Every bit helps, thanks for your support over the years, we would not be where we are today without you, your donation is helping my son, Dante “Live Life FULL”. Thanks for taking one small step with us and hope you can join us at Erindale Park (Mississauga) on Aug 26. Sincerely Yours,  Tanya Johnson

Vote for the Prader-Willi video in the Let’s Move Video Challenge and help send Dante to Washington to meet the First Lady.

 

Georgie

My name is Georgie and I have Prader-Willi syndrome (PWS). Some of you may know me, but you might not know the love and patience that have been required by my Mom to get me where I am today. Please take a minute out of your busy day to hear my story. Babies like me everywhere need your help.

When I was born I couldn’t move or cry or even suck very well. I was like a rag doll. The doctors called me “failure to thrive” and “content to starve,” but Mommy called me a miracle. I slept all the time – nearly 24 hours a day. My mom had to set the alarm to get up to feed me because I was too weak to cry. I couldn’t hold my head up or stay awake to eat. When other babies smiled back at their moms, I couldn’t. I didn’t have the muscle tone to smile yet. My mom had to make it through those early months knowing that I loved her, but I couldn’t show it. I know that was hard on her, but she loved me and insisted that I got the nourishment I needed. Sometimes it took an [...] continue the story