Melissa’s Pregnancy

Melissa was 27-weeks pregnant when she found out that her baby had a serious genetic disorder. Her condition meant that the baby would not live long once born, if it survived the pregnancy.

Freaky stuff, right?

Freaky stuff, right? Scary, awful, heartbreaking, frustrating, I get it totally and sadly I understand. I am so sorry that others have to deal with this. I would never want another person to hear the words………….Cancer. I found the lump in my breast the day our precious son was born, March 16th, 2009. He came 6 weeks early, maybe to save Mommy’s life, at least that is how we look at it. My little angel that keeps me so busy and actually sane, luckily.

The surgery results showed the cancer did not spread to my lymph nodes. Because I have HER2 positive cancer, I had to go to Washington State for a PET/CT scan of my body as an ultrasound had also found spots on my liver and right kidney. I am clear, no more surgeries. Although those first weeks are definitely a haze (especially with a newborn), I recall the fear and anger more than anything. My anger was mostly the time it was taking from the baby (the miracle baby we were told we couldn’t have). I shuffled from test to test in tears as he lay in the upstairs nursery of the same hospital too premature to come [...] continue the story

So What If My Baby Is Born Like Me Part 1

Jono Lancaster, 26, (featured in BBC3’s Love Me Love My Face documentary) has suffered rejection and discrimination his entire life – all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.

The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered – what if my baby was born like me?

The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.

Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?

So What If My Baby Is Born Like Me Part 2

Jono Lancaster, 26, (featured in BBC3’s Love Me Love My Face documentary) has suffered rejection and discrimination his entire life – all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.

The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered – what if my baby was born like me?

The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.

Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?

So What If My Baby Is Born Like Me Part 3

Jono Lancaster, 26, (featured in BBC3’s Love Me Love My Face documentary) has suffered rejection and discrimination his entire life – all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.

The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered – what if my baby was born like me?

The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.

Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?