Ebb & Flow; Storytelling for Cancer Survivors

The idea for this film came out of Mike and Bonnie Lang’s experiences facilitating adventure trips, retreats and conferences with young adult survivors. Through the many conversations and group discussions with survivors, they realized how much each person’s story was able to help others and they were always amazed at the wisdom that came from the sharing those stories. Mike and Bonnie recognized that many young adult survivors didn’t realize they had a profound story or did not know where to start when sharing their story.

The goal of this film is to look at the stories of young adults with cancer using the concrete five phase story structure as the framework. Through the film we hope to encourage survivors to view their lives as epic stories; stories that need to be told to others so that the wisdom gained from the journey will not be lost. We understand that life is complicated and cannot always be categorized into five simple phases, but we think it is a good place to start.

We hope you enjoy the film. Know that your level of connectedness with the film may depend on where you are at in your cancer journey. We encourage you to [...] continue the story

Too Much Information

May 15, 2011

Do you ever forget where the “Too much information” line is? I spend so much time around other Crohnies, close friends and family that I forget what is acceptable in everyday conversation. The regular guy in the street doesn’t really want to know about my bowel movements.

When someone asks me a question with regards to Crohn’s, I plough straight in. Quite often describing many of the symptoms, side effects and affected areas of my body. I don’t seem to blush with embarrassment anymore. Does this mean I’m comfortable talking about bums? When I meet new people I seem to find myself talking about my ailments, whether they want to hear them or not. I was once a shy and restrained boy and now I am upfront and open.

My wife gets fed up with how much I talk to strangers but I don’t seem to be able to stop myself. Up until being diagnosed, I had never heard of the condition, so now I find myself wanting to make everyone aware.

I obviously keep some of the “juicy” details to myself as they are not for the faint hearted. I hide these details from most people as I do like [...] continue the story

Easing the Burden: Parkinson’s Disease | Part 2

Parkinson’s disease is a neurodegenerative disorder that impairs motor skills, speech and other functions. The disease affects 5 million worldwide and many suffer from Parkinsons Disease in Maine. “Easing the Burden” is an introduction to a few of these Mainers who courageously battle this disease everyday. The program also includes an interview with actor-turned-advocate Michael J. Fox.

Easing the Burden Chapters

Easing the Burden: Parkinson’s Disease | Part 1

Parkinson’s disease is a neurodegenerative disorder that impairs motor skills, speech and other functions. The disease affects 5 million worldwide and many suffer from Parkinsons Disease in Maine. “Easing the Burden” is an introduction to a few of these Mainers who courageously battle this disease everyday. The program also includes an interview with actor-turned-advocate Michael J. Fox.

Easing the Burden Chapters