In 2005 Tony Nicklinson had a catastrophic stroke, which has left him utterly paralysed. He has what is known as ‘locked in syndrome’ and cannot move, talk, feed himself or perform even the most basic function without help. He can only communicate via a computer controlled by his eyes.
In this two part series Tony speak with BBC News about wanting to end his life.
In 2005 Tony Nicklinson had a catastrophic stroke, which has left him utterly paralysed. He has what is known as ‘locked in syndrome’ and cannot move, talk, feed himself or perform even the most basic function without help. He can only communicate via a computer controlled by his eyes.
In this two part series Tony speak with BBC News about wanting to end his life.
A locked-in syndrome patient has tweeted for the first time. It is believed to be the first time ever a patient with this condition has tweeted using special eye movement technology.
Tony Nicklinson, who seven years ago had a major stroke that left his body completely paralysed, but his mind unharmed, tweeted the simple message:
@TonyNicklinson Hello world. I am tony nicklinson, I have locked-in syndrome and this is my first ever tweet. #tony
The moment was captured by Channel 4 Dispatches ahead of a programme which broadcasts next week (Monday 18th June at 8pm) about Tony’s life and his forthcoming landmark court hearing, which will directly consider for the first time the question of euthanasia — where a doctor is authorised to take the life of a patient.
Tony’s story will broadcast on Channel 4 Dispatches on Monday 18th June at 8pm and afterwards online.
For residents outside of the UK the following 3:00 minute segment has become available – http://www.guardian.co.uk/society/video/2012/jun/18/locked-in-syndrome-tony-nicklinson-video
Jono Lancaster, 26, (featured in BBC3’s Love Me Love My Face documentary) has suffered rejection and discrimination his entire life – all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.
The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered – what if my baby was born like me?
The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.
Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?
Jono Lancaster, 26, (featured in BBC3’s Love Me Love My Face documentary) has suffered rejection and discrimination his entire life – all because of the way he looks. Born with a rare genetic condition, Treacher-Collins syndrome, Jono has no cheekbones or external ears and has endured years of bullying and countless hospital appointments.
The nature of the condition means that any child Jono fathers will have a 50 per cent chance of contracting Treacher-Collins. Now Jono has an important question he wants answered – what if my baby was born like me?
The film follows Jono and his girlfriend Laura as they go on a quest to find out the options available to them should they decide to start a family. Jono meets a variety of families who have faced or are facing this very conundrum. He also meets with youngsters affected by Treacher-Collins to see if attitudes have changed since his days at school.
Confronted by all the options, what will they decide? And will the decisions they make draw them closer together?