Alive Inside

Alive Inside documentary short – Story of Gil & Denise

Music and Memory

The latest version direct from the filmmaker about Henry and his amazing and poetic response to receiving the great gift of his favorite, personalize music that was researched and donated to him through the Music and Memory Project www.MusicAndMemory.org

Acceptance

By Michelle Lemme

Approaching the one year anniversary of my “descent into hell”; and where am I today?  I am pleased to say that I am healthy and, for the most part, happy.   I’ve learned enough to mostly manage (live with) my troublesome anxiety and obsessive/compulsive behaviors.  Frankly I can’t really wrap my head around how my “OCD behaviors” are linked to my depression, having said that, I do find that doing the behavior is soothing, I guess because the act of performing certain behaviors consumes all of my focus and attention, which is sometimes a huge relief.   My compulsive cleaning is under control (most of the time), but, I simply cannot leave my face alone, touching, picking and making a mess of my skin – who wouldn’t pick at their face if they were always peering into a 15X magnifying mirror!!  Obviously, I still struggle and know that I still have things to work on, which is why I continue to see my therapist.

I continue to struggle with the whole “not working” thing, which I was thrust into when I got sick.  If I am honest, I know that I have allowed myself to believe that my “value” is and [...] continue the story

CdLS Story – Zackery

At the routine 20 week ultrasound, my son Zackery, was not cooperating so they ordered one for the 28th week. The doctor came in and said that the right arm looked like it was winged and that we needed to go for a 4D ultrasound. At 31 weeks we had it done and found out that not only was his right arm was not normal, but he also had heart problems and was small in size. There was also a blockage in the umbilical cord. We started going for ultrasounds twice a week to check the umbilical cord, and started doing any test we could to see what syndrome he had. All the test come back normal.

But at an ultrasound at the 36th week, we found out that there was barely any flow through the umbilical cord, so they sent me straight to the hospital so they could induce. Zackery was born September 28th. He sounded like a kitten meowing when he cried and he had a head full of hair. He was only 3 lbs 15 oz. They took him to up to NICU for evaluation. Later that day the geneticist came into my hospital room and said [...] continue the story