Bowel transplant patient experience

Michael Seres talks about his bowel transplant experience relating it to how and why patients need to be part of the decision making process. He speaks to surgeons, clinicians and doctors at the Intestinal Transplant Symposium held in Oxford in June 2013.

Follow Michael on Twitter @mjseres

Or his blog Being A Patient Isn’t Easy

 

More from Michael Seres

The Price of Life

Documentary about the rationing of high cost cancer drugs by the National Institute for Health and Clinical Excellence.

On a finite budget, the NHS cannot afford to offer every treatment on the market, so how is it decided which medications should be made available?

Adam Wishart follows the nail-biting decision about one drug, with unprecedented access to decision-makers the National Institute for Health and Clinical Excellence, the patients who need a life-extending treatment, and the American company that discovered and will profit from it.

As the body that decides which pharmaceutical treatments the NHS can afford, the National Institute for Health and Clinical Excellence wields enormous power over many patients in the UK.

Focusing on the cancer drug Revlimid, this eye-opening documentary, by director Adam Wishart, speaks to a senior member of the Institute and to those – such as cancer patients and NHS managers – who will be affected by its decisions.

Michael Seres @11.38pm

Friday, 7 October 2011

Well we just got the call that a bowel has become available and we are now on route to oxford. It really is the most nerve racking thing you could ever wish to happen. My wife and I just didn’t know what to say to each other when the call came.

They have told me so far that my estimated surgery time is 7am as they have to retrieve the bowel. Also they cannot give the final go ahead until they see the bowel.

I will keep you posted as to what happens. Am currently on the m25 and I don’t really know what more to say. You wait for this to happen but when it does its so so scary.

Speak later its going to be a long night.

XX Michael Seres

Follow Michael @mjseres

More from Michael Seres

Michael Seres – Wed 21st Dec @ 3.49pm

(Editor’s Note: This is Michael’s first blog since the transplant).

So let me recap about life from my perspective since 8th October.

Somehow I seem to have blogged a day after my op from intensive care. In truth I have absolutely no memory of doing that at all. In fact I have no real recollection of the first few days post transplant at all. Obviously I have been told all about the care given to me and the team that looked after me but I feel terrible because I don’t even remember who did what. My last memory before the op was of that walk to theatre. The most nervous, scary 100 yards of my life. I’m not really sure how I kept it together or even if I did but I do remember giving my wife a kiss goodbye walking through the doors and just wanting to cry as I physically shook with nerves. I remember then climbing on to the table in the anaesthetists room and feeling freezing cold. I kept saying can you just put me to sleep but it was about 30 mins before that could happen. Sticky pads that linked up to various monitors were stuck to [...] continue the story

Locked-In Syndrome | Tony Nicklinson’s Story

A locked-in syndrome patient has tweeted for the first time. It is believed to be the first time ever a patient with this condition has tweeted using special eye movement technology.

Tony Nicklinson, who seven years ago had a major stroke that left his body completely paralysed, but his mind unharmed, tweeted the simple message: @TonyNicklinson Hello world. I am tony nicklinson, I have locked-in syndrome and this is my first ever tweet. #tony The moment was captured by Channel 4 Dispatches ahead of a programme which broadcasts next week (Monday 18th June at 8pm) about Tony’s life and his forthcoming landmark court hearing, which will directly consider for the first time the question of euthanasia — where a doctor is authorised to take the life of a patient.

Tony’s story will broadcast on Channel 4 Dispatches on Monday 18th June at 8pm and afterwards online. For residents outside of the UK the following 3:00 minute segment has become available – http://www.guardian.co.uk/society/video/2012/jun/18/locked-in-syndrome-tony-nicklinson-video  

 

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