Wendy Preskow

Wendy Preskow, NIED Founder, President & Chief Advocate As a parent, whose 27 year old daughter has struggled with Anorexia and Bulimia for over 12 years, Wendy is the passionate voice and driving force behind the National Initiative for Eating Disorders (NIED). Having lived with a sufferer and experienced the devastating effect Eating Disorders have on families and extended family and friends, Wendy reached the point of no return in late 2011. She could no longer sit back knowing her daughter was falling through the cracks of health care system that had failed her family and so many others in the same predicament.

Together with a core team of passionate advocates Wendy formed NIED in February 2012 to drive Eating Disorders awareness, understanding and action.

The National Initiative for Eating Disorders (NIED) is a not-for-profit coalition of dedicated health care professionals, counsellors and parents with children suffering from Eating Disorders.  Since we formed NIED in February 2012, we have become a respected and powerful voice, promoting Eating Disorders education and awareness to create positive change for a seriously underfunded, under-represented and misunderstood brain disease.

Did you know Eating Disorders have the highest mortality rate of ANY mental disease?

We collaborate with community groups, doctors, nutritionists, [...] continue the story

Joan Park

Joan Park Joan Park’s enthusiasm about her work and commitment to superior patient care has gained her admiration and respect from patients, colleagues, nursing leadership, physicians and other disciplines.  Collaboration, innovation, scholarship and advanced practice are the hallmarks of her leadership.

In 1998 the dynamics of the healthcare system were changing to be more dollar efficient and yet of higher quality and more responsive to patients.  Joan was selected to develop the role of Case Manager at St. Michael’s Hospital.  This journey led her to discover that the potential of Case Management is to optimize quality patient care while at the same time managing the effective and efficient use of resources.

Her definition of quality became:

“Right Place, Right Time, Right Care, Right Provider = Right Cost”

From there, the spark of leadership grew to a roaring flame as she created momentum to both define and promote Case Management nationally.

By connecting with others, a small network of Case Management providers representing diverse disciplines, sectors, provinces and territories was formed. The National Case Management Network of Canada was launched in November 2006.  As President of the National Case Management Network (NCMN) she spearheaded the creation of the Canadian Standards of Practice for Case Management in 2008.  [...] continue the story

Sylvia Langlois

Sylvia Langlois M.Sc. OT Reg. (ON) Sylvia is the Faculty Lead – Curriculum for the Centre for Interprofessional Education and an Assistant Professor in the Department of Occupational Science and Occupational Therapy, Faculty of Medicine at the University of Toronto.

In her role at the Centre for Interprofessional Education, she has been involved in developing, implementing and evaluating a longitudinal, competency-based curriculum for over 3700 students in eleven health profession programs. This curriculum is designed to prepare students for interprofessional collaboration, a patient/client-centred model of service delivery where multiple healthcare providers from different professional backgrounds work together to provide high quality care. She has been instrumental in creating a number of innovative programs to encourage the development of collaborative competencies in students.

One of the Interprofessional Education programs, the Health Mentor Program, adapted from a similar program at Thomas Jefferson University, has made a significant impact on health care students. Here students from various professional programs are grouped with an individual from the community living with a chronic health challenge. Through a set of interviews, students learn first hand about the impact of these health challenges and experiences in the health care system. As well, they develop an understanding of issues related to [...] continue the story

Mandy Maresky

Mandy Maresky My son Aaron was diagnosed with Crohn’s disease at the tender age of 7. In 2009, shortly after my son’s diagnosis my family and I started Aaron’s Apple.

Parents of children with chronic illness are faced with the harsh reality that they are unable to control the illness that their child has been diagnosed. One of the options to ease the suffering of these children comes in the form of highly priced medical treatments. Some parents are fortunate enough to have medical insurance that will cover such high costs. However many are not so fortunate and simply don’t have the financial means to ease the intolerable pain that their child is experiencing.  Aaron’s Apple’s primary goal is to help families cope with overwhelming medical costs. As the costs of delivering healthcare rises, the ability of families to afford the appropriate and necessary healthcare diminishes. This places enormous stress upon families. In their time of need, Aaron’s Apple helps families pay for expensive medication and treatments.

Aaron’s Apple has raised over $400,000 in it’s short existence, and amazingly has helped 20 families gain access to unaffordable medications. In addition, in 2013 Aaron’s Apple donated $50,000 to the Aaron’s Apple Amenities fund, administered by [...] continue the story

Christine Jonas-Simpson

Christine Jonas-Simpson I watched the tears drop from my nurses’ eyes as they gently took my blood and when they hugged me goodbye at the end of their shifts. My sweet curly red-haired son died and was born still after his cord knotted when I was 37 and a half weeks pregnant – he was nearly 6 pounds. My nurses and family remained by my side, the specialist who induced me followed up on his day off and my family doctors cried with me at home.

I was deeply moved and comforted by my caregivers’ expressions of grief. While I was living my worst nightmare I could not help but wonder what it was like for my healthcare colleagues to grieve and bear witness to our devastating loss. As a nurse I experienced grief of my own patients as well as identified with their families’ losses – these moments transformed me.

When my son died in 2001, I could not find research on nurses’ experiences of grieving when a baby dies and how this changed them. Healthcare professional grief was and continues to be hidden and not often discussed. Given I was a nurse and a researcher, I decided to invite my colleagues [...] continue the story