Sherry L. Dupuis, Ph.D.

Sherry L. Dupuis, Ph.D. Sherry Dupuis is the former Director of the Murray Alzheimer Research and Education Program (MAREP), and a Professor in the Department of Recreation and Leisure Studies at the University of Waterloo. Guided by an authentic partnership approach and a number of years experience working in long-term care, Sherry’s research program has focused primarily on identifying ways to improve the quality of the lives of persons living with dementia and their families and to ensuring that the voices of persons with dementia and their informal and formal partners in care are actively included in research, education, and practice.

Sherry is also committed to research as a means of triggering personal transformation and social change. Thus, she is interested in exploring arts-based approaches to research and alternative representations of research results that make research findings more accessible and more effective in shifting images and understandings of dementia and actions in dementia care. Her most recent examples include “Re-imagining Dementia Through the Arts”, a community arts-based project that resulted in eight visual and poetic expressions of dementia from the perspectives of persons living with it and their family members, and “Cracked: New Light on Dementia”, an innovative research-based theatre production that [...] continue the story

Sandy Smeenk

Sandy Smeenk Founder and Executive Director, The ILC Family Centered Chronic Pain Care Program

Sandy Smeenk is the Executive Director of the ILC Family Centered Child and Youth Chronic Pain Care Program, the first charity in Ontario and Canada with the dedicated focus to bridge gaps in community based care for the 2.2 in 44 children, adolescents, young adults and families living with complex chronic pain diseases including those that are hereditary.

As Founder of the ILC, Sandy has a well-developed business sense and ability to meet project deadlines where she uses her past experience as a Human Resources Professional in government contract compliance and managing operating budgets of $1.5 M, to reach ILC’s short and long term strategic goals.  Sandy works with a dedicated volunteer Board of Directors and Business and Medical Advisory Committees, where they focus on promoting and highlighting what is done well in health care and community services, while influencing the much needed change to integrate inclusionary care to this at risk population.

Since ILC’s incorporation, Sandy has led substantive initiatives that have resulted in improvements in chronic pain care, most recently including the development of the Difficult to Diagnose Disease Scientific Workshop and Conference where multidisciplinary specialists come together to begin [...] continue the story

Lynda Covello

Lynda P.S. Covello, LL.B., LL.M. Author, Motivational Speaker,

T1D Patient Opinion Leader,

Professional Vocalist, International Lawyer and Business Consultant

Lynda was diagnosed with Type 1 diabetes in 1973, and has lived successfully with the condition for more than 40 years, through many career and life challenges, including two successful high-risk pregnancies and a high-powered international legal and business career. Although close friends and family knew that she lives with T1D, Lynda managed this information with the rest of the world on a strict ‘need-to-know’ basis. Most of the people she worked and socialized with did not know.  Having faced the debilitating effects of fear and discrimination on the part of others in the early years of living with her condition, she made a conscious decision to keep it to herself until she was sure people could be trusted.  Even those who knew she lived with T1D were not privy to her thoughts and feelings on the subject.  Now she has begun to speak, write and sing publicly about her experiences with the hope that by doing so, she will empower others to survive and thrive on the never-ending T1D journey, as well as raise public and professional awareness of the unique challenges encountered by [...] continue the story

Andrea Shewchuk

Andrea Shewchuk July 9, 2014 2014 Aphasia Institute Ambassador Award co-recipient

The term “creative process” is most commonly heard in association with art.  Rarely are its aspects appreciated in the arena of health+wellness.

A multi-dimensional, universal machination, at the origin of all life, art and manifestations, ebbs+flows of confusion+light, space+action, external+internal, choice+passivity, quiet+communication, patience+frustration, peace+discomfort, Free Will+Destiny, knowing+not, intellect+intuition, matter+energy, words+colours, fear+perception, before+after, association+freedom, thought+realization, circumstance+response, cycles+chaos, universal+specific…

The path to imbalance is one that does not usually perceive the existence of its creativity.  It tends to ignore messages and agree to presentations, habitually designing disconnection of intertwining facets until, a norm of chronic unwellness, a “nameable” disease or crisis and, opportunity.

The creative process of healing is not a dissection of causes, each to be directly met with its cure.  It is a navigation and understanding of a life, of process, awareness, communications from within and reading from the story in which one participates.  It is a consciousness of interconnection and of the whole.  It is an evolution providing for greater self-knowledge, openness to the experience of an expanded reality and the courage to greet its circumstances with a wisdom that often appears to defy convention.  It is transformation.

My repertoire of childhood conditions was, like anyone’s, [...] continue the story

Jodeme Goldhar

Jodeme Goldhar Championing Healthcare Integration for Major Transformation – For Patients and the System

Jodeme Goldhar’s passion has helped healthcare organizations break out of their siloes to work together for a common goal – enhancing the care experience and outcomes for their most vulnerable clients.

She has had strong support from the (mostly female) leadership team at Toronto Central Community Care Access Centre (TC CCAC) particularly CEO Stacey Daub. Jodeme’s position as Lead for Health System Integration for Complex Populations and Primary Care has allowed her to facilitate a true partnership between organizations to develop and implement ICCP, a program which smooths transitions (for example, between home and hospital) and forms one care team around each client. Each team is quarterbacked by a TC CCAC care coordinator who communicates with team members and works with the client’s family doctor to develop a coordinated care plan – based on the priorities of the client and family caregivers.

ICCP began as a pilot project focussed on frail seniors, the 1% of patients who use 30% of healthcare resources. It brought together an unprecedented variety of healthcare organizations within the city of Toronto.

Jodeme often prefers to put the spotlight on these partners and the transformation they’ve achieved: [...] continue the story