Cross-Country Check In with Cycle4: National Relay

In an earlier blog post we introduced the C4WM: National Relay and Team Cyclebetes rider Aryssah Stankevitsch.

Aryssah had just embarked on a cross-country journey to raise $15,000 for the Juvenile Diabetes Research Foundation.  Having been diagnosed with Type 1 diabetes only 2 years earlier, a long-distance athletic event was a formidable undertaking. It took the Relay just 13 days to reach Toronto from Vancouver for a mid-point media event. Here we were finally able to meet Aryssah face-to-face to find out what drove her to spend a month in the saddle, to raise money, and speak out about her experience as a diabetic.

“I want to be worth imitating.  I believe that with any sort of ailment that you’ve had, you can fight a battle a lot harder when you’re going uphill than when you’re on flat terrain.”

Pat Com: How long have you been a Diabetic? Aryssah: I was diagnosed when I was 19. I’m 21 now so I’ve been living with it for 2 years. I had been hypoglycemic before (which means low blood sugars), so I would load up on sugars before I did athletic activities. I guess my doctor didn’t take it as a warning sign of diabetes as no one else [...] continue the story

Kathy Kastner: Thinking, Talking, Asking

Our good friend Kathy Kastner over at Ability4life.com has been trying to make sense out of doctor/patient communication for a long time. How often do people not take medication properly because they don’t understand the instructions? How often do patients simply forget what a doctor has said because they can’t listen as fast as a doctor can talk? Imagine how important sensitivity to communications needs to be when a highly educated doctor speaks to adults with 8th grade literacy, or immigrants with limited English, or seniors with failing memories, or teenagers with bursting libidos. Kathy’s been busy producing a series of videos and she describes the objectives in her own words: In between doctor’s appointments, we patients live our lives, and a ‘one size fits all’ rarely applies to daily health regimes. It’s in our own best interest to ensure we’ve negotiated a schedule we can follow. With my ‘think about it, talk about it, ask about it’ campaign I use real life examples to help kick start that process.

View Kathy’s Youtube Channel here http://www.youtube.com/user/kathykastner

Tweet #MyPS and Share Your Patient Story

#MyPS is “My Patient Story” on Twitter. And Patient Commando will share it.

Patient Commando is embarking on a mission to start something different. If you use Twitter, we want you to share your patient story. #MyPS – My Patient Story, is a way to surface the patient experience in 140 characters or less.

#MyPS tweets can be about anything related to the patient experience; An experience at the hospital, how you manage your medication, or even how you’re coping with a disease. Whether your a patient, caregiver or practitioner we want you to share with us and our growing community.

An Example:

Just add #MyPS to the tweets you want to share and Patient Commando will do the rest. Using Twitter, Facebook and a soon to launch website, Patient Commando will shine a light on your experience.

We aim to create a healthcare community supported, educated and inspired by the patient experience.  Your voice is the key.

Patient Commando & CYCLE4:National Relay

Toronto native and Queen’s University English major Aryssah Stankevitsch has a big goal.

“Two years ago at age nineteen I was diagnosed with type 1 diabetes. Since then, I have immersed myself in anything I could to raise awareness and funds for juvenile diabetes research. My main inspiration in life is to find a cure; when that day comes, I want to know that I was part of it and contributed. I’m prepared to bike, crawl, cart wheel across the country to do so”.

And on August 13, Aryssah did just that.  As a member of the CYCLE4:National Relay team, she kick started a journey across Canada, a distance of almost 7000 kilometres. Aryssah and the other CYCLE4:National Relay team members will be riding in pairs, symbolizing that great things are always accomplished in ‘tandem’ with others. The relay will wind up in the seaside town of Digby, Nova Scotia on Sunday September 4, 2011 welcomed by 50,000 people as part of the Wharf Rat Rally.

The CYCLE4:National Relay in its inaugural year as the legacy of Cyclebetes and Team H2V – both national cycling relays that began in September 2007. As a banner program of CYCLE4:Whatmatters, the National Relay allows all riders to raise funds to support the health issues and organizations that matter most [...] continue the story

Michele Hepburn

Michele Hepburn, BHSc President, The 3C Foundation of Canada

The 3C Foundation of Canada is a registered Canadian charity devoted to enhancing the quality of life for children and adults living with Crohn’s, colitis and colorectal cancer (the 3Cs). Under Michele’s leadership, The 3C Foundation has grown from start-up in 2009to a dynamic, well-respected, patient-centred organization that supports and delivers programs and services to the 3C community.  The Foundation’s programs and services are directed toward enabling those with any of the 3Cs to be empowered and confident participants in their own disease management.

As a founding Board Member and long-serving President, Michele is renowned for both her personal dedication to the Foundation and her passion for its causes.  She devotes herself to the full-time, volunteer position of President. Her background as a health care professional and Michele’s own personal experience with inflammatory bowel disease (IBD) contribute to her comprehensive and compassionate approach in supporting children and adults touched by the 3Cs.  She has attained her Master level training for Stanford University’s Chronic Disease Self-Management Programand personally facilitates the “IBDealing With It!” self-management program, taking a very hands on approach with patients and their families.

In addition to her role with the 3C Foundation specifically, Michele [...] continue the story

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Patient Commando creates social impact by providing platforms that amplify the patient voice.

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