“I’ve lived with chronic illness for over 35 years. And I have a vision for re-imagining the present in order to create a sustainable, compassionate and healthy future for my 3 year old granddaughter.”
Zal Press Patient Commando
It took over 30 years living with Crohn’s Disease before it really struck me how little people like me participate in the decisions and choices affecting our healthcare.
I ended up wondering what the world of healthcare might look like if the voices of all patients were empowered and their choices supported. What if it was actually operated by patients? How different would that be?
If you’re someone who lives with a chronic health problem that just won’t let go of you, then this is where you belong. This is where you can start to get even.
That’s what’s going on here. Join us. We’re all patients too.
Our Work
You
Our work is all about you and improving your experience. We are committed to the understanding that patient experience is “the sum of all interactions, shaped by an organization’s culture, that influence patient perceptions across the continuum of care.”
Stories
This is where we started and is central to everything we do. Stories are where we find meaning. Our collection of patient stories enriches our understanding and appreciation of the lived illness experience.
Blog
Critical issues demand attention. It’s important that patient perspectives be included in all decisions affecting health care. This is where we enable the patient voice to be heard on issues that matter.
Policy
It’s no longer good enough for health policy decisions to be made without patients included.
Patient Experience
We’ve been part of the patient experience movement before it was a movement.
Advocacy
We organize people around critical health issues and enable them to advocate for their own cause.