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A Picture of Health

In 2007 a team of photographers went across Canada to document the health care delivery experience of marginalized, remote and vulnerable populations.

Their cameras uncovered the stories of “invisible minorities” – people who have barriers to health care either due to where they live or how they live. They are found on the fringes of civilization. They are living among us in the inner city. They suffer from unseen illness or systemic social barriers. These photo essays give us all an exclusive look into an experience that is very Canadian, but foreign to most of us.

The Frontline Health collection is presented in collaboration with the Canadian Public Health Association. See the first 7 photo essays from the selections below. New stories will be released every month over the next year.

 

Subscribe here to receive instant notification when a new story is posted http://eepurl.com/rGwyr

  • More Frontline Health Stories

A Picture of Health

In 2007 a team of photographers went across Canada to document the health care delivery experience of marginalized, remote and vulnerable populations.

Their cameras uncovered the stories of “invisible minorities” – people who have barriers to health care either due to where they live or how they live. They are found on the fringes of civilization. They are living among us in the inner city. They suffer from unseen illness or systemic social barriers. These photo essays give us all an exclusive look into an experience that is very Canadian, but foreign to most of us.

The Frontline Health collection is presented in collaboration with the Canadian Public Health Association. See the first 7 photo essays from the selections below. New stories will be released every month over the next year.

 

Subscribe here to receive instant notification when a new story is posted http://eepurl.com/rGwyr

  • More Frontline Health Stories

Suddenly, Cancer is the funniest joke in NYC

So who says you can’t laugh at Cancer?

This past week, the audio recording of Tig Notaro’s comedy stand-up routine about her breast cancer diagnosis last summer turned up on Louis CK’s site for a $5 download. Here’s an excerpt of Louis’ reaction:

The show was an amazing example of what comedy can be. A way to visit your worst fears and laugh at them. Tig took us to a scary place and made us laugh there. Not by distracting us from the terror but by looking right at it and just turning to us and saying “wow. Right?”. She proved that everything is funny. And has to be. And she could only do this by giving us her own death as an example. So generous.

Now New York City is about to turn Cancer into the funniest joke in town. First off-Broadway and then Columbia University will celebrate the art of laughing at cancer.

On October 19, the 2011 Canadian Comedy Award winner for Best One Person Show headlines the prestigious United Solo Theatre Festival just off-Broadway. Daniel Stolfi turns his tussle with non-Hodgkins Lymphoma at the age of 25 into a tour de force of dramatizations, characterizations, humiliations and exhilarations. He takes on stigma, icons like Lance Armstrong, and confronts the assault on his hair, his sex drive and his machismo with flair and flamboyance that leaves you belly aching and heart aching. Then he dances, like no Cancer can dance at all.

At Columbia University on November 7, Will Reiser of last year’s feature film “50/50” delivers a speech at the prestigious Narrative Medicine program. Doctors studying the art of narrative competency will be listening to this career funny man describe how he turned his personal cancer journey into one laugh track after another in the hit film starring Joseph Gordon Levitt and Seth Rogen.

Imagine. A roomful of doctors, who are studying serious literature to learn how to better understand patient stories to improve their practice, are going to be listening a young hellcat storyteller. Now this is progress! Its recognition that valid story comes in many forms and that comedy holds equal weight in the battle of creative expression.

It’s also recognition that comedy makes a seemingly tough subject like cancer digestible by the public. The TV series “The Big C” starring Laura Linney, is about a suburban mother, diagnosed with melanoma cancer, who tries to find the humour in the disease. According to WashingtonPost critic Hank Stuever: “It’s for people who are repelled by the warm-fuzzy, disease-o’-the-week dramas of cable television.” And the darkside series “Breaking Bad” turns a high school teacher’s cancer diagnosis into a life of crime that takes many funny and bizarre twists.

Laughing at cancer is no longer taboo. If you’re in New York City this week, take in “Cancer Can’t Dance Like This” and get your belly aching.

  • More Stories That Can Make You Laugh, and maybe cry a little too

When Nurses Grieve

By Christine Jonas-Simpson June 27th, 2012

I watched the tears drop from my nurses’ eyes as they gently took my blood and when they hugged me goodbye at the end of their shifts. My sweet curly red-haired son died and was born still after his cord knotted when I was 37 and a half weeks pregnant – he was nearly 6 pounds. My nurses and family remained by my side, the specialist who induced me followed up on his day off and my family doctors cried with me at home.

I was deeply moved and comforted by my caregivers’ expressions of grief. While I was living my worst nightmare I could not help but wonder what it was like for my healthcare colleagues to grieve and bear witness to our devastating loss. As a nurse I experienced grief of my own patients as well as identified with their families’ losses – these moments transformed me.

When my son died in 2001, I could not find research on nurses’ experiences of grieving when a baby dies and how this changed them. Healthcare professional grief was and continues to be hidden and not often discussed. Given I was a nurse and a researcher, I decided to invite my colleagues to explore nurses’ experiences of grieving with me through the use of digital video in order to create a research-based documentary. I chose this medium to conduct my research so I could share my research to a broad audience.

I also wondered how mothers lived and transformed with the loss of their babies. Again, little was known of mothers’ experiences when a baby dies and so I decided to do my own research using the arts and film. Today I am working on a fourth documentary exploring children’s experiences when a baby sibling dies; another hidden and often unrecognized grief. Fathers, who are also often overlooked, are included in this children’s documentary.

It is my hope that these documentaries of grief, loss, resilience and transformation open up spaces for sharing experiences with one another and that we as a society will embrace grieving and loss as a natural human experience so we can feel less isolated and alone. These films are my son, Ethan’s, living legacy and reflect the love and continuing connection my family and I have with him.

 

  • More by Christine Jonas-Simpson

Disability Horizons – A Dynamic Duo

If you love socialising, travel or adventure; then this is definitely for you!

In November 2010, two disabled guys from London, on a roadtrip in California, dreamt up a huge project they wanted to bring to the world. Imagine two lifelong friends, two electric wheelchairs, two Personal Care Assistants, a hoist and an accessible car stirring up a big cocktail of imagination and innovation, during a dream adventure.

This idea was to start an online disability lifestyle magazine like no other…

Martyn_Srin_SFAfter months of working hard to turn the vision into a reality; Martyn Sibley and Srin Madipalli launched www.disabilityhorizons.com. Disability Horizons pioneers an innovative 21st century approach to disability by empowering an aspirational community to provide and share content that informs, inspires and entertains.

The Disability Horizons community is already 20,000 strong. Their readers write the articles, share their wealth of disability knowledge and progress towards their individual dreams together. Articles include personal stories on employment, sport, travel and relationships. The guys share many of their own daring escapades and have regular article contributions from high profile organisations, service providers, politicians, celebrities, entrepreneurs and various opinion formers that have the power to shape and change lives.

There is a page for readers to pose their own questions, an area to post unwanted disability items (the classifieds section), a resources profile page for disability companies to share useful products/services, and the Disability Horizons ‘Travel Zone’.

In honour of the Paralympic Games, Disability Horizons has graciously agreed to share some of their stories with us. The insights continue to grow our understanding of how people around the world have common and uncommon experiences in managing life limiting conditions.  The Dynamic Duo at Disability Horizons are breaking new ground and give new meaning to the old phrase “walk the walk”.

 

  • Stories from Disability Horizons
  • Discovering my last taboo

    Posted on by Disability Horizons

    By Ben Davies In this article I am going to explore the morality of paying for the company of a female or indeed male if you are a disabled person. But first I am going to talk about relationships and the potential barriers I feel exist as a disabled person. I personally really struggle with relationships and socialising full stop, whether it’s going the pub with the boys or chatting someone up. I simply cannot do it as my confidence in this area is really low. Overall I’m ok with the boys as we talk about football and drinking, the Read More…

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  • Max’s journey

    Posted on by Disability Horizons

    By Nicola @nickynoona My story is about my son Max who is now 12 years old and has Asperger’s Syndrome. Max was born a healthy 7lbs 10oz in the hot summer of 1999. From day one he was an easy baby. Always happy and placid and rarely cried or threw tantrums. I counted myself very lucky to have such a content child. Max was walking by 11 months old and was ahead of other children with his talking too. I was not worried about his development or behaviour in any way. Coming up to Max’s second birthday I had been Read More…

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  • Planning an accessible wedding

    Posted on by Disability Horizons

    By Carrie-Ann Fleming Almost 2 years ago, in November 2009, my boyfriend Darren surprised me with a candlelit anniversary dinner, which ended in a romantic proposal. I was ecstatic, and friends and family were thrilled for us. After celebrations came the questions about when we would get married, and what we were planning… which was a daunting prospect! As a wheelchair user, I really didn’t know where to start with all the preparations, how exactly do you plan an accessible wedding?! The first thing to decide on was the venue. We ruled out a church ceremony, as neither of us Read More…

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  • Matt’s marathon

    Posted on by Disability Horizons

    Matthew King from Bedford, who is about to start his career as a lawyer, completed the New York marathon in 2007 in his chin controlled powered wheelchair, which he uses as a result of a spinal injury. Matt kindly shares his experience of travelling to New York and taking part in the marathon. By Matthew King My name is Matthew King, and in 2004 at the age of 17 I broke my neck playing in a game of rugby, and have been left paralysed from the neck down and dependent upon a ventilator to breathe at all times and use Read More…

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  • The lasting effects of a temporary disability

    Posted on by Disability Horizons

    By Margo Milne Imagine you were born perfectly fit and able-bodied. As a teenager, you suddenly became severely physically disabled, but then you became able-bodied again. How would that affect your attitudes to disability and disabled people once you were an adult? When writer and broadcaster Hardeep Singh Kohli was 13, he came down with Guillain–Barré syndrome, a usually temporary condition that causes sudden paralysis, often triggered by infection. He was in hospital for 10 weeks, and it took him a year to learn to walk again. Lucy Pask, who runs the website Great Aunt, also had Guillain–Barré syndrome, in Read More…

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The Waiting Room: Mitch’s View

By Mitch Houlahan

The Waiting Room is an intimate exposure of the personal battles occurring within the walls of Highland County hospital, peering into the lives of people who often need public healthcare to survive. I’m sure anyone can recall the emotions which can emerge in any type of public waiting room; although the difference between renewing a driver’s licence and refilling a child’s prescription is fairly obvious. The Waiting Room has taken on a difficult task of expressing the daily routine and atmosphere of an extremely busy public hospital where the majority of patients are uninsured.

The Waiting Room is not a film in isolation. It is part of a comprehensive Storytelling Project that connects the audience on a personal level, to make us feel closer to the person who must navigate through the public healthcare system for themselves and their family. It is very likely that the majority of viewers (including myself) will be unable to relate to the experiences shown in the film; but the value of the film will be measured in the awareness it stands to generate. Filmmaker Pete Nicks gives the prominent role to the voice of the patient – it couldn’t get much more firsthand than The Waiting Room.

The Storytelling Project gives us a preview of many of the film’s individual stories and a background to understanding the film’s effort. The project delivers content across several different platforms including the film; a web component that shares cultural data and cross media material generated by staff and volunteers; a mobile application; and an interactive platform accessible to patients in the waiting room of Highland Hospital. The objective of all of this programming is to give “hospitals, policy makers, journalists and the general public a greater understanding of the evolving relationship between public policy and people’s lives.”

The beauty of The Waiting Room is that the patient voice is clearly heard, but not without the equally important views of the doctors, nurses and hospital staff. A real sense of an interconnected community is depicted by these stories. The hardships and struggles that we are learning about are not isolated; they are a part of something much larger and more difficult to comprehend. I think if there is any chance of improving the imperfections of public health care, it makes sense to have a balanced understanding of the opinions of employees who deliver care and the patients who rely on it. The Waiting Room has provided a structure for this understanding of opinion with its storytelling project. The weight and usefulness of this initiative now depends on the willingness of the viewers to understand the voices which have been given a platform to be heard. Editor’s Note: Mitch Houlahan is our Associate Story Editor and has put together our feature on the “Waiting Room”. Mitch brings some interesting perspectives to the project, among which are his youthfulness, his political science education and his medical system interactions as a result of serious sports related injuries. Compared to a much different Canadian health care system, the realities around a US public hospital have been a real eye opener.

 

  • Stories from The Waiting Room