28 Years and still mobile………

By Jackie October 13, 2011

I reached a milestone of sorts this month!!. I made 28 years with what I thought was a death sentence when first I found out I had MS. You see in 1983 there was “NOTHING” but steroids to treat the symptoms not the actual disease and I just figured I would never see 40 let alone 50 and next month I will turn “50″ and I am so looking forward to it. While it has not been easy and the last few years have been trying because over the years MS has taken something hear and there from me but never long term, but in 2009 it took my ability to think clearly, which is called cognition or lack there of and that was major for me because I thought I had this MS and working thing figured out. You see I went back to school and obtained a Masters degree so that when mobility became such that could no longer physically go to work, I could teach online but that came to an abrupt halt when I found new employment and had trouble passing test during training. If asked I could tell you more than you wanted to hear but testing was at the end of the day and I could not remember and it was very frustrating. In any case I consulted with my Neurologist and he thought I could no longer work and I was not hearing that so he sent me to a Nero Psychiatrist and that testing was easy stuff on first glance but I was answering wrong. Here I am with a masters degree and having trouble with simple math. Even after all the testing I was not ready to give until the Nero Psychologist confirmed that MS had damaged my brain so much that while I still remembered things I had severe cognition issues and it would no longer be in my interest to work and needless to say I took it hard, but after a few months I tapped into the faith that got me thus far and came to terms with the fact that the good Lord did not bring me this far to leave me. I have always been a positive person so I looked for a way to share my talents to help others, as a way to give back without any monetary gain. So I went to the source of my current issues and signed up to volunteer for the MS society. Due to volunteering I found a link to so many people and services that have changed my life in a positive way so much so, I do not have time or energy to worry about what I have lost to MS, I now have move forward with a clear understanding that the past is just that “the PAST” and with a different mindset I take one day at a time.