Fighting Crohn’s Disease on a Tandem

Posted: 08 Apr 2013 05:52 AM PDT

Hello to all my Crohnies old and new.  I am sat writing this latest blog while slightly spaced out on pain killers, home off work due to my silly tummy and even sillier IBD.

Over the weekend I helped celebrate my wife’s Grandma’s 90th birthday. This celebration included a lot of party food and subsequently led to a rather upset bowel.

Yesterday saw me struggle with diarrhoea which I tried to control with loperamide tablets (Imodium) then during the night I had really bad cramps which meant I didn’t sleep well and had to call in sick to work (I probably overused the loperamide).

As I’ve mentioned before, calling in sick to work is something I try not to do too often but sometimes there is no choice.

This is just a usual weekend for me and my Crohn’s and it isn’t even at its worse. It can be a horrible disease to have to live with. It is incurable. It can be suppressed by medication but not forever. You are always looking over your shoulder; waiting for Mr Crohn’s to return.

Because of this disease and its sister, Colitis, a charity called Crohn’s and Colitis UK was set up (aka NACC). They are a fabulous charity who help provide information and support to those who suffer from the affects of IBD. This is not just the person with the illness but their friends and families. They offer support over the phone as well as local groups where anyone affected by IBD can meet up.

They have a couple of subsidiary groups too that cater for different age ranges, from smiles with younger children to IBD and Me for teenagers as well as the overall umbrella group Crohn’s and Colitis UK that caters for everyone.

Here are some useful links:

Crohn’s and Colitis UK: http://www.crohnsandcolitis.org.uk/content/home.asp

Smilies: https://www.nacc.org.uk/content/services/smiliespeople.asp

IBD and Me: http://www.ibdandme.nacc.org.uk/

Local Groups: http://www.groups.crohnsandcolitis.org.uk/default.asp

Each year my local group, Leicestershire and Rutland, hold a fundraising event called “The Bluebell Walk and Cycle Ride” which is held at Rutland Water. This year Notts and Northants groups will be helping to organise the event.

It is a brilliant event that helps raise much needed funds for our local group as well as for the national charity funds.

This year my wife and I are tackling the hardest challenge of this event, the 25 mile bike ride, on a tandem, dressed in our onesies (Walk in your onesie being this year’s theme).

The bike ride takes us around the beautiful Rutland Water reservoir, taking in the glorious Bluebell woods (So called as this time of year the woodland floor is carpeted by Bluebells). Being a reservoir you would think it would be easy and flat…..(This is what I told my wife), in fact there are some tough hills and tricky terrain. She hasn’t ridden a bike for 15 years, so tackling this challenge, dressed in a silly outfit is really going to take some serious effort.

So to help spur us on we are looking to raise as much money as we can to help make it worthwhile.

So please help us achieve our personal goal of £250 by going to our JustGiving page and donate as much as you can. We don’t care if its 1p or £100, it all helps.

So please visit:

http://www.justgiving.com/BenSuziOnATandem

and generously help those in need.

Thanks

Ben x

 

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