Fight the stroke

About #fightthestroke is a documentary that tells the story of a child who suffered a stroke at birth. Together with his parents, this boy wants to answer the question of what would happen if, instead of trying to fix something that is broken, we focused our attention on what already works? #fightthestroke is a project by: Familydan.org and Shoot4Change, Francesca, Mario and Roberto D’Angelo, Andrea Ruggeri – ARE YOU SERIES is a Milano Film Festival project, made thanks to the support of Banca Prossima. Find out more at www.areyouseries.com

Freaky stuff, right?

Freaky stuff, right? Scary, awful, heartbreaking, frustrating, I get it totally and sadly I understand. I am so sorry that others have to deal with this. I would never want another person to hear the words………….Cancer. I found the lump in my breast the day our precious son was born, March 16th, 2009. He came 6 weeks early, maybe to save Mommy’s life, at least that is how we look at it. My little angel that keeps me so busy and actually sane, luckily.

The surgery results showed the cancer did not spread to my lymph nodes. Because I have HER2 positive cancer, I had to go to Washington State for a PET/CT scan of my body as an ultrasound had also found spots on my liver and right kidney. I am clear, no more surgeries. Although those first weeks are definitely a haze (especially with a newborn), I recall the fear and anger more than anything. My anger was mostly the time it was taking from the baby (the miracle baby we were told we couldn’t have). I shuffled from test to test in tears as he lay in the upstairs nursery of the same hospital too premature to come [...] continue the story

Birthing Plan

After our daughter Regan was diagnosed with Full Trisomy 18 at twenty weeks our lives completely changed forever. The emotions you experience are unexplainable – even to your partner who is going through the same thing. I had been pretty lucky throughout my whole life to manage every challenge I was given. Well, that hot day in July proved to be the end of the control that I thought I had over my life. Here we were receiving the most precious gift two people could ever hope for, and she was going to be taken back. This was inconceivable for a control freak like me. I once told my husband that getting a diagnosis of Trisomy 18 was similar to being told your child has an incurable Stage IV cancer. You don’t know how long you will have this child, and you have to choose how you are going to embrace the time that you do have. There is no right or wrong decision when it comes to deciding what is best for your child because it was all done out of love. Every choice you make following this diagnosis is what is right for your family and your child.

After [...] continue the story