“Team Jaxon” profiles the parents of 5-year-old Jaxon Davis, who tell the impassioned story of the brain cancer victim. When Jaxon’s condition deteriorated during a family vacation, they received help from an anonymous family and were able to make it back to San Antonio Texas where they live.

“Team Jaxon” received an Emmy Award from the National Academy of Television Arts and Science’s Lone Star Chapter. The My Real Life Moment™ patient video series was developed as an advocacy tool with the primary focus being to help the families heal by sharing their stories.

The Robertsons share their experiences living with ALS and how their support systems help them. Thank you to the Robertsons, for all you do in the ALS community, and to Kyle and Matt for filming/creating this video.

My name is Donna and I am mother to 3 wonderful children: Frankie 8, Alex 7, and Lil Pat 4. My husband Pat and I had never heard anything about NS until Lil Pat was born. He has pulmonary stenosis, developmental delay, poor muscle tone, feeding issues at birth, enlarged ventricles in the brain, short stature, and for our Christmas present last year he started having seizures – daily. He has 4 – 10 seizures daily and he will not grow out of them. They are very hard to control with medicine. We are looking towards surgery hopefully in the spring to reduce the number of seizures a day.

At the time Lil Pat was born we had started to notice Alex’s severe speech problem and behavioral problems also began. His speech has since progressed so far that he barely qualifies for services through the school. He has some reading issues but like everything else he works very hard to overcome them. He and Lil Pat started growth hormones 2 weeks ago for short stature. At the time of Lil Pat’s diagnosis of NS, we were put in touch with [...] continue the story