My Father’s Final Gift

Twenty five days before my father died, on my birthday exactly six years ago, he gave me a present. He had the sparkle back in his eye—the one that had been reduced by pancreatic cancer to an ashen ember—when he gave it to me. It was a small package, rectangular in shape, in crisp brown-paper wrapping. Twine neatly wrapped around the corners, crisscrossing back and forth arriving at a bow crafted by the sure hands of a man who built his first model airplane at age seven.

This small brown package will be the final gift my father ever gives me.

My family does gifts strangely. For instance, we have our own mangled interpretation of hanukkah, where each person of the family has a night to give out presents. If we have five people home for hanukkah, we celebrate only five of the eight nights. The joy of gifts are in the giving, not receiving, so before opening your present you must first guess what’s inside. This tradition is “plenty questions”, a more forgiving version than the standard twenty questions.

“Animal, Vegetable, or Mineral?”, I ask.

We are in it for the game of teasing the gift out of the gifter. It’s like extracting [...] continue the story

The Photographer

A young man sets out on a quest to capture the perfect photograph. In the summer of 2005, I was involved in a severe car accident that left me paralyzed from the waist down. Upon waking up in the ICU, one face was staring back at me; my father’s. For the next month, my father had the nurses on duty wheel a chair into my room every single night, and that’s where he’d be until I opened my eyes in the morning.

Seven years since that fateful day in June, my father remains my biggest supporter. After more than two years in a wheelchair, I finally defied the odds and became vertical once more. I know deep within myself that this improbable recovery has a great deal to do with my father. And ‘The Photographer’ is my way of expressing  my gratitude. My father, the most reliable human being I’ve ever known.

Ara Sagherian

Writer and Director of the short film ‘The Photographer’ (2012)

My Kidney, His Life

In April of 2008, I donated my left kidney to a perfect stranger so that my dad could receive a kidney from yet another stranger. Four donors gave to four people they had never met before in the largest kidney exchange to date in the Midwest. All did it to save their loved ones. This short documentary is a personal story about the fears, concerns and joys experienced throughout the donation process. It’s about having the opportunity to save my father’s life yet having to risk my own to do it. What if something happened to me in surgery? How would my absence affect my eight year-old son? How could I refuse the opportunity to help my father? Viewers are often exposed to the technical aspects of organ donation but rarely experience the added intimate human side. This story takes exposes the mental and emotional journey I went through as a live donor.

Authored by Pierre Kattar & Alexandra Garcia.

What’s the Deal With Women, Fatherhood, and Executive Functioning?

Alex, Kirsten, and Jack are back together in Orlando, Florida for the Autism Society Conference. We had a blast at the conference and filmed a TON of AMAZING videos!

Kirsten talks with Dena Gassner about the special challenges that come with being a woman on the spectrum.

Alex and Dr. Robert Naseef gave a talk about fatherhood at the ASA conference. They talk about the uniqueness of the relationship between a father and an individual on the autism spectrum.

Jack and Alex talk with Claire Dumke about executive functioning. This involves learning to drive, keeping track of things, and other great info.

This is the first of 4 episodes that take place at the conference. This is also the first of our new multipart episodes.

(Autism Talk TV – Ep. 16)