Itchy and Scratchy Lessons Learned

By Preet Bhogal

I went through a lot of versions of this piece. I narrated it, wrote it longhand, typed it on my laptop, even jotted down notes on my phone but nothing felt right. I thought of how I wanted to say it then questioned myself and started over completely. I took a lot of breaks to check Facebook, the latest celebrity gossip, and watch reruns of the Simpsons. I even took a break from taking a break to read up on the psychology of procrastination. During this whole process all I really learned were trivialities about Facebook friends and celebrities, and that I have way too many episodes of The Simpsons memorized.

I still had not written a damn thing about my experience as a patient with a lifelong skin condition.

And I have a lot to write about because I have over thirty years of experience as a patient suffering from a chronic skin condition. I mean, the first symptoms of my eczema appeared when Joe Clark was Prime Minister! That was a pretty long time ago. The Simpsons weren’t even in reruns! There were new episodes of The Jeffersons! Madonna’s first album wasn’t even out yet!

There is so much [...] continue the story

Could I be Manic

By Michelle Lemme

What is wrong with me?  Honestly, sometimes I feel as though I’m incapable of not spending money.  I think I may have a serious problem with “impulse control” when it comes to purchasing.  Do you think I could I be manic?

A friend told me about a website that carries the brand of swimsuit that I really like.  I already own one, it’s in great condition.  I rationalized that with the amount of time I spend in my suit at the cottage, it would make sense to have two that are comfortable (as opposed to the second one I own, which, impulsively I had to have, even though it clearly did not fit “properly”).  In any case, I found the same suit, different color and purchased it for just under $100 including tax and shipping.  I made that purchase on February 26, today is March 19, 2012 and I am still waiting on delivery.

I spend, roughly $150 every other month on “supplements” which I purchase online.  This has been going on for approximately 6 months.  These purchases include PGx, for weight loss, weight maintenance and glycemic control.  I have yet to lose more than the six pounds I lost before I started [...] continue the story

Risk

By Michelle Lemme

Awake at 5:00 a.m., the “witching” hour, when I am most consumed with ruminating thoughts about my daughter, SA.  I do everything in my power to stay in the present moment, but I am unable to find the calm that almost always come when I do my diaphragmatic breathing.  I pray, but am not sure what it is that will bring me relief…I love my adult child, she needs help and I cannot provide her with what she needs.  Our situation, after nearly 8 months apart, has not improved.  I am not yet strong enough to have her in my life, it is simply too risky and my husband and other daughter are terrified that I will descend into the depths of hell again if our interactions continue.

In late November, after nearly 8 months of virtually no contact with each other (see Into the Darkness), my daughter and I reunited.  We met at my therapist’s (Marlene) office.  For the better part of an hour, Marlene spoke with SA about my illness and the impact that our relationship has on my psyche.  Marlene was brilliant; there was no finger pointing, no blame or shame.  Sarah and I held hands and [...] continue the story

Mixed Cursing: March Update

This month’s installment of Peter Dunlap-Shohl’s graphic novel that shares his personal experience with Parkinson’s Disease.

More Mixed Cursing

Life Love Laughter and Learning

By Jo Collinge

I Love my Life, especially when it is filled with Laughter. I’m Learning to Live my Life with Parkinson’s, to challenge it as well as accommodate all the uncertainties that it brings.

It’s been quite a while since I have woken up in the middle of the night with a blog there in my head, ready and waiting to be written. When that happens, I have to get up, log on, and type it up before I forget what I want to say. The result is this, and replaces its former version, originally drafted about a week ago but not published, and titled “Exercise and Parkinson’s”. How dull is that, and my boring rambling spiel on the benefits of exercise and endorphins has been well and truly ditched in favour of this.

A couple of weeks ago, I woke, as usual, stiff and in pain, somewhere between 5:00 and 6:00 in the morning, in urgent need of a call of nature. Having managed to lever myself out of bed, thanks to the re-positioning of my bedside cabinet about a month ago, I shuffled off to the bathroom, stopping off en-route to the loo for my usual early-morning bleary-eyed inspection in [...] continue the story