Life is Hard

I have been avoiding the internet, blogging, and all things online for the past week or so. I have touched in with facebook, and occasionally made sure I didn’t have any important e-mails pending, but mostly I have gone off the grid.

I have also been hiding in my room.

Here is why: my son was just diagnosed with Apergers, OCD, ADHD, ODD, a mood disorder, social phobia, and sensory processing disorders. He may also have an eating disorder. In the last week, I have seen what it is like for a child to lose control and rage without remembering the incident, or even knowing why. I have watched my son struggle to understand why he has to take new medications everyday and what the name/label of Aspergers means. I have learned that I am not alone amongst even my neighbors in dealing with this disorder, and I have cried for the child that I thought I had.

Life was not fun this week, and this blog is about the joy in life. My son was the one thing in our lives that we could count on as being good. My husband and I both suffer from chronic illnesses, my pituitary gland has [...] continue the story

Great pain and expectations

November 30, 2011

Being involved in the Twitter community and following numerous others with Crohn’s and like belly troubles I have realized I am not alone when it comes to pain and the great expectations that goes along with having a chronic illness.

I have pain every day. My body hurts. My joints hurt. My belly hurts. My nether regions hurt from going to the bathroom ALL the time. Every now and then I am lucky enough to get my hands on some pain medication which, more often than not, doesn’t really do much to relieve the pain anyway. So sometimes I, like others with Crohn’s, have to go to the ER to get some heavy duty drugs to get a little relief. This isn’t usually met with kindness from the ER staff though. I know I personally have been labeled as “narcotic seeking” for an occurrence when my very own Dr. GI sent me there for pain management. Since three of the four major hospitals share electronic records in my area I am pretty screwed out of going to the ER for pain management now. I am usually immediately told there is nothing they can do for me. And if they [...] continue the story