Brian Grant’s Perspective

Brian Grant was diagnosed with young onset Parkinson’s in 2008 at the age of 36. He’s a father of six children and a 12-year veteran of the NBA. At the time of his diagnosis, Brian reached out to other Parkinson’s patients, caregivers and medical professionals for advice on how to power forward with the disease. Like you, Brian continues to ask questions, pursue answers and learn about his disease.

Life Love Laughter and Learning

By Jo Collinge

I Love my Life, especially when it is filled with Laughter. I’m Learning to Live my Life with Parkinson’s, to challenge it as well as accommodate all the uncertainties that it brings.

It’s been quite a while since I have woken up in the middle of the night with a blog there in my head, ready and waiting to be written. When that happens, I have to get up, log on, and type it up before I forget what I want to say. The result is this, and replaces its former version, originally drafted about a week ago but not published, and titled “Exercise and Parkinson’s”. How dull is that, and my boring rambling spiel on the benefits of exercise and endorphins has been well and truly ditched in favour of this.

A couple of weeks ago, I woke, as usual, stiff and in pain, somewhere between 5:00 and 6:00 in the morning, in urgent need of a call of nature. Having managed to lever myself out of bed, thanks to the re-positioning of my bedside cabinet about a month ago, I shuffled off to the bathroom, stopping off en-route to the loo for my usual early-morning bleary-eyed inspection in [...] continue the story

Sleep – Is It Overrated or Am I Just Stubborn?

By Soania Mathur

Well here I am, 3:40 AM, up and out of the warmth of my bed – yet again. It’s been years of sleep issues of every sort. Sometimes it’s initial insomnia where I’ve spent countless hours staring into the darkness, reading into every shadow, tossing and turning, trying to find a comfortable position, trying not to wake my husband, trying not to look at the clock which seems to mock my difficulty. Other nights I do fall asleep, either because I haven’t truly slept in literally days or because I’ve given in and actually taken yet another pill, this one designed to make me sleep for a few precious hours. I don’t often do this, mostly due to my own stubbornness, the desire to will my body to do what it’s supposed to do without the need for something outside of me to do the job. This obstinate stand usually frustrates my husband and my oldest daughter whose plea “Mama, what’s one more pill especially if it helps?” makes complete logical sense. Yet to me that one little pill (or the three it takes now) represents yet another way this disease has taken away my ability to control [...] continue the story

Speech to World Parkinson’s Congress

Thank you Dr Lees for that kind introduction.

Good evening Ladies and Gentlemen.

I am truly honoured to have been given the opportunity to address this the Second World Parkinson Congress.

As you know the patient address at the First Congress was delivered by Michael J Fox.

I have been a fan of Michael’s since I was a teenager.

One of my first trips to the cinema was with my sister Christine to see “Back to the Future” . I thought it was a fantastic film.

As we left the cinema I said two things to Christine. The first I have no problem with.

I said: “Michael J Fox is so cool.”

The second statement I am now not so sure about. I said:  “I wish I was just like him”.

Four years on from the first Congress I am delighted to welcome you to Scotland. Many of you are new to Glasgow and I am sure you will enjoy your stay in this wonderful city.

Glasgow is known throughout the world as a city of culture, as a city of invention and industry, and as you will discover, a city inhabited by colourful, humorous and optimistic characters.

For me Glasgow is a great place to have Parkinson’s.

It is also the [...] continue the story

Bryn: Diagnosis

The question I am most often asked is “how did my Parkinson’s disease start?”

This is my first blog entry, telling the story of the year from first noticing something was wrong and getting the diagnosis of Parkinson’s disease. It started towards the end of 2006, there was a tremble in my right arm which caused some irritation when trying to use a mouse, pressing the wrong button, deleting entire paragraphs, that sort of thing. I booked an appointment with a locum at the local surgery and he did some tests and came to the conclusion it was nothing to worry about.

Months went by and the tremble got slightly worse and started in a minor way in my right leg; additionally there was some pain in the arm. People at work noticed and told me to ‘Sort it!’ so I booked into see my regular GP in July 2007. The GP saw something.

She held a finger up and I had to reach out from my nose and touch her finger with my right hand. My arm wavered as it travelled to her. This raised a suspicion in her mind and she decided to refer me to a neurologist. In addition she referred me [...] continue the story