Take One Minute – Frustration – Episode 3

I am preparing for my future, its a mental preparation, I am not afraid, I hope to face things with an inner calm and to have the grace to dispel frustration…

Some things you can fix, others you can’t. Parkinson’s disease is for the moment one that can’t. As each day passes another little piece of me slides away with illness and as each day passes I counter balance this erosion by making something good happen.

Frustration could so easily wear you down, especially as someone with little patience, but I have learned to simply go with the flow or to find a solution, it’s about staying in charge, it’s about being you, it’s about life.

Colleen Henderson-Heywood September 26, 2010

More from Take One Minute

Humour, Hope & Parkinson’s

Bryn “Wobbly” Williams delivering a rallying call to the Parkinson’s community at the World Parkinson Congress 2010 in Glasgow November 3, 2010

My Sacred Loss

By Jackie Barzely January 2, 2010

I’m no longer allowed those precious moments Of awakening to each new day And for that splinter of time Greeting the morning “Parkinson’s free” Before my body alerts my brain And the daily battle starts again That little window Of hope and sanity now inaccessible to me Once again testing my faith and strength For now leaving me in the lurch And searching for another Fragile branch On the “tree of life” To cling onto.

Chronic disease and grief

Svend Andersen has Parkinson’s disease. Based on his personal experiences and his professional background as a Psychologist he shares his thoughts on the grief that follows having a chronic debilitating disease.

________________________________________ When someone contracts a chronic disease, it is necessary to work with grief. The sense of being healthy and having a well-functioning body is lost, along with a loss of parts of one’s identity – at least for a period – maybe a loss of work role, a loss of possibilities regarding certain activities, and partly a loss of the former role in the family.

The difficulty of acceptance, denial, anger Such losses are not easy to digest and one reacts in different ways, sometimes to the astonishment of others. In the beginning, there can be periods denying being ill. You feel sad, you cry, you want to be hugged and let go of the sorrow. You feel anger. Why me? It is unfair. Some feel anger towards the disease, some against the doctor, who does not provide the help expected. You have feelings of guilt and ask yourself questions like “Was it my own fault that I fell ill?” and “Could I have done something differently?” You are fearful of the future [...] continue the story

My Parkinson’s journey and art

By Anne Atkin March 16, 2010

In 2005, I was diagnosed with Parkinson’s and straight away there was this persistent voice in my head that was saying the same thing over and over, “You’ve got Parkinson’s. You’ve got Parkinson’s”.

So I sat in the neurologist’s room trying to cope with what was happening, still thinking that the diagnosis was wrong. I couldn’t have Parkinson’s. That was something elderly people got, elderly people who shook a lot and I didn’t shake. The diagnosis must be wrong. My frozen shoulder was just that, a frozen shoulder. Admittedly I had had it for years but maybe mine was stubborn. As for the other symptoms – the weakness on my left side, the drooling, the pins and needles, the fatigue, the aches and pains – there was a perfectly logical explanation. “it’s menopause, it’s because I’m middle-aged, it’s anything but Parkinson’s.” I was scared and as far I was concerned, this was the end of my life as I knew it. All my plans had just flown out of the window.

But the voice in my head knew what it was talking about. I did have Parkinson’s. The twenty eight 11 year olds in my [...] continue the story