I don’t quite know where to start. I always want to be respectful to MrP. He’s a good man. He’s a human being and I like human beings, generally. I think most are pretty damned fine people. MrP is doing brilliantly at work. Most people see him handling this Parkinson’s thing brilliantly. Hats off to him, big respect.
There is just one fly in the ointment. He is very angry. With me. Few people see this. His paranoia has come back in droves. He suspects I am having an affair, if not several of them. My emails and phone texts are all found to have meanings in them. He looks at them alot. He thinks I lie to him. My work twitter is apparently in code. (I have stopped tweeting. I love talking to people in my work community, they are great fun and just like a good natter, but it distresses him too much. MrP’s closest friend suggests I carry on, but I don’t like the arguments it can cause.) He has seen me do things twice, that I know of, that I have not done.
Peter Dunlap-Shohl is an obscure cartoonist who lives far, far away in Anchorage, Alaska.
His diagnosis of Parkinson’s Disease (PD) lead him to create a very personal and open blog. Though “Off & On” started as an information clearinghouse for the Anchorage Parkinson’s Disease Support Group, where meeting schedules, agendas, speakers etc could be found it also become a therapeutic hobby for him.
Recently Peter has taken on the challenge of creating a graphic novel that illustrates his battle with PD. He has graciously allowed Patient Commando to host images of his work as he completes it.
One of the most troubling symptoms for those with Parkinson’s is bradykinesia, which is just a fancy word for slow movement. I’m grateful (alleluia) that my tremor and dyskinesia have subsided with help from a great Deep Brain Stimulation (DBS) programmer and medication adjustments. However, I continue to be plagued by slow and stiff movement, particularly in my hands. I find it ironic that before Parkinson’s, I could talk and walk fast, eat quickly, play the accordion at a fast clip, type 99 wpm without errors, complete university in three years, work three jobs simultaneously, and overall function as an efficient and fast-moving person. People previously described me as an Instant Person.
With Parkinson’s, particularly when my medication and DBS stimulation aren’t working at an optimum level, life seems in slow motion and particularly my hands move at a snail’s pace. For example, sometimes buttoning my blouse, zipping my jacket, turning the key to open the door, folding a sheet of paper and putting it in an envelope, putting a stamp on an envelope, handwriting, taking coins and bills out of my wallet, eating with a fork, preparing or cutting food, putting on makeup–all can seem like insurmountable tasks with my [...] continue the story