Reflections on My Three Year Cancerversary…Lessons Learned

I should start by saying that on my actual Cancerversary (April 15th) I was so preoccupied with a doggie crisis that I spend all day at the emergency veterinarian’s worrying about my dog that I forgot all about what day it was! Needless to say, in the days that followed I did a bit of reflection on what surviving three years means to me.

I remember shortly after I was diagnosed, a friend of mine told me about her mother who was also battling cancer at the time. She mentioned that her mother had been fighting for three years. I thought, wow, what a long time!! In hindsight, it seems like no time at all!! It’s strange, I barely recognize myself or my life anymore, but I love who I am and I certainly love my life…cancer and all! I had always thought I knew what I wanted, but it took cancer to show me what was really important, and it wasn’t what I thought it was. Cancer has been both a blessing and a curse, and along the way, I’ve learned a few things that I’d like to share.

I’ve never felt so loved or so alone in my life

It is [...] continue the story

How I Became an E-Patient Through Cushing’s Disease

For all of my early life, I was the good, compliant, patient. I took whatever pills the doctor prescribed, did whatever tests h/she (most always a HE) wrote for. Believed that whatever he said was the absolute truth. He had been to med school. He knew what was wrong with me even though he didn’t live in my body 24/7 and experience what I did.

I know a lot of people are still like this. Their doctor is like a god to them. He can do no wrong – even if they don’t feel any better after treatment, even if they feel worse. “But the doctor said…”

Anyway, I digress.

All this changed for me in 1983.

At first I noticed I’d stopped having my periods and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant.

Then I got really tired, overly tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time. I would lie down in the back of the van, set an alarm and sleep for [...] continue the story

TEDxEast – Ari Meisel Takes on Crohn’s Disease

May 9, 2011 Ari Meisel trains his body to conquer Crohn’s disease.

Mixed Cursing: April Update

This month’s installment of Peter Dunlap-Shohl’s graphic novel that shares his personal experience with Parkinson’s Disease.

More Mixed Cursing

Will I never learn?

By Jo Collinge Will I never learn that too much wine, or any at all for that matter, is not good for me. It’s Sunday morning, ten to six, I’ve been up for the last 45 minutes feeling much better than this time yesterday. Friday night had been busier than usual – Tae Kwon Do (on my own this time without Antonia, she had a better offer for a night out playing Bingo of all things with Tim and Elise) followed by a very quick very cold shower at the sports centre and then round to Karen’s for the monthly book club get together.

The book under review this time was “One Day” by David Nicholls. If you haven’t read it, do. It really is very very good. (OK and that’s enough of the superlatives.) I hate to admit it, I cried at the end. I know when I’m on to a good read if I start dreaming about it, and when I’ve finished I can’t start another for at least a few days whilst I get thoughts of the former out of my head, which is what happened with this particular book. I didn’t get home too late, about an hour [...] continue the story