Cracked: new light on dementia

Published on Jun 3, 2015

Cracked: new light on dementia follows Elaine Carter’s journey from her diagnosis through to her new life in a long-term care home. Elaine and her children, Caroline and Clay, grapple with what the diagnosis means, if and how the diagnosis changes their relationships and how they struggle to be with each other in the present where Elaine calls them to be. Filled with poignancy, honesty and humour, this play brings to the fore the richness of the social world of dementia and encourages audiences to see the humanity of persons who are living with dementia. The play is an innovative research-based theatre production that casts a critical light on society’s one-dimensional view of dementia as an unmitigated tragedy. The play raises questions about the predominant discourse of loss that defines current conceptions of dementia, and the dehumanizing care practices that still prevail in institutional care settings. Inspired in part by Leonard Cohen’s words in Anthem, the play is intended to inspire alternative ways of seeing persons with dementia, instill the importance of maintaining strong relationships with them, and reinforce the imperative for good ethical care.

The play is based on research conducted by Drs. Sherry Dupuis, Gail Mitchell, [...] continue the story

Terry Fox and a Proud Mom

By Kristen Knott

Written Saturday October 5th at 11:30 pm

My daughter Zoe announced in early September that she would be singing at the upcoming Terry Fox assembly at her school. When I learned that it was only her singing at the event I was amazed but secretly nervous for her. We listened to her practice daily, yet I couldn’t help but be amazed how she was fine with getting up in front of half the school to perform.

September 26 came the day of the Terry Fox assembly, which was followed by the kids running in his honour. When my mother and I arrived at the assembly, I could see the nervous energy in Zoe. The celebrations began with a heartfelt tribute to our Canadian hero, who so bravely gave his energy, pain, passion and finally his life into raising money for Cancer research. I listened, in a very different way than I ever had before to his story. It hit me as I sat in the gymnasium that I was one of the many Canadians with cancer who had benefited from what Terry Fox had accomplished so long ago. In fact the first Terry Fox annual Run was in 1981 the [...] continue the story

Perinatal Loss – Open to Hope Radio

Published on Nov 13, 2012

Christine Jonas-Simpson is an Associate Professor in the School of Nursing at York University in Toronto. After the loss of her own baby boy in 2001 she began to focus her arts-based research on how human beings live and transform with loss. She is currently working on a documentary series and is the author of the children’s book, Ethan’s Butterflies.


More by Christine Jonas-Simpson

Nurses Grieve Too: Insights into Experiences with Perinatal Loss

This ground-breaking documentary shares what grief is for nurses who care for bereaved families with perinatal loss. This research-based documentary answers the research question: What is the experience of grieving, for obstetrical and neonatal nurses caring for families who experience perinatal loss? Nurses describe the professional and personal impact of grieving, what helps them and how the experience has changed them and help them to grow. The documentary makes the invisible grief of nurses – visible. It aspires to support nurses so they no longer feel alone or isolated in their experiences of grieving, as many nurses can carry the pain and memories of the families’ loss and experiences with them for years.

Jonas-Simpson, C. (Producer) (2010). Research team: Jonas-Simpson, C. (PI), Macdonald, C., McMahon, E., & Pilkington, B.

Funded by AWHONN Canada ; Canadian Nurses Foundation: The Nursing Care Partnership Program (made possible with a grant from the Canadian Health Services Research Foundation). ; Faculty of Health, York University ; Health, Leadership and Learning Network: The Interprofessional Education Initiative, Faculty of Health, York University

To purchase this film, please visit the York University Bookstore.

More by Christine Jonas-Simpson


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